Community partners

Discover full circle support for the PI community: IgCares®

Resource: A comprehensive patient support program provided by Octapharma USA.

Living with primary immunodeficiency (PI) can be challenging; access to support should not be. That’s why IgCares was created. Explore educational materials, insurance and financial guidance, treatment resources, lifestyle enhancement, community connection, and charitable giving at IgCares. 

It's what's inside that counts: A patient education speaker program about IVIG and PI

Date & time: Once each month (dates and times vary). This program runs through November 2026.
Hosted by: ADMA Biologics

A free, live educational webinar program for people living with PI and their caregivers. Learn more about managing PI and an IVIG treatment option from a trained healthcare provider, and discuss commonly asked questions.

Explore self-infusing with Ig: Patient education with Q & A sessions

Date & time: Twice each month (various dates and times). The program runs through December 2026
Hosted by: CSL Behring

Free educational programs for primary immunodeficiency (PI) patients and their caregivers. These programs feature a presentation from a trained nurse and stories from a PI patient advocate.

4Ward study: A chronic neutropenia study is now enrolling

Date & time: This is a two-part study that lasts for 7-9 months
Hosted by: X4 Pharmaceuticals

The 4WARD Study is a Phase 3 study, or clinical trial. The goal of the 4WARD Study is to learn more about the oral investigative study medicine, mavorixafor. The study will evaluate if mavorixafor may increase neutrophil cell counts, may decrease the chance of getting infections and is safe and well tolerated. 

Global survey on plasma-derived medicines and donations

Your insights are important!

Patient voices are essential to strengthening awareness and understanding of plasma-derived medicines. To better understand patients’ knowledge about where their medicines come from, their perceptions of plasma donation, and the importance of a sustainable plasma supply, please take a few minutes to share your feedback

The intersection of experience and measurement.

A convergent mixed-methods study on meaning and purpose in families of children with primary immune deficiencies

Dr. Kailey Bradley, Ph.D., LPCC-S, NCC, FT is conducting research with parents who have children with PI on meaning-making. Please email kailey@allrefuge.com if you are able and interested in participating in this study. This study involves a survey and a 50-60 minute interview. She is happy to answer any questions related to this study, which is IRB approved.

Empowering independence: Dave's CVID journey

For patients living with chronic, complex conditions like common variable immune deficiency (CVID), every moment of stability, freedom, and health matters. Dave, a long-time CVID patient, knows this firsthand. His journey highlights how Accredo Specialty Pharmacy, part of Evernorth Health Services, empowers patients through personalized support and clinically focused care.Video created by Accredo Specialty Pharmacy. 

Get support throughout your treatment journey

Learn about immunodeficiencies and how CVS Specialty can support you throughout your treatment journey, including traveling with medications and managing side effects.