About the Immune Deficiency Foundation

The Immune Deficiency Foundation (IDF) is the largest primary immunodeficiency (PI) patient advocacy group in the United States, with 44 years of expertise in primary immunodeficiency. As such, we take pride in helping to connect, engage, and empower families to live longer, stronger, healthier lives. Whether you are looking for subject matter experts on PI (clinicians or patients), information about an upcoming event, or a statement from the organization on a particular topic, we can offer guidance and resources in a variety of areas, including:

• Stories of rare, chronic, or invisible illness.
• Insurance access challenges.
• Plasma supply (and plasma-derived therapies).
• Issues related to the immunocompromised.
• The importance of newborn screening (particularly related to SCID).
• Genetic and inherited conditions.
• General healthcare or nonprofit topics.
• Difficult/long journeys to diagnosis.