| Immune Deficiency Foundation

Understanding primary immunodeficiency (PI)
Understanding PI
The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
Learn more about PI
Living with PI
Living with PI
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
Learn more about living with PI
Get involved
Get involved
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
Get involved today
Advancing research and clinical care
Advancing research and clinical care
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
View resource details

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Undiagnosed podcast thumbnail with person walking in shadow toward light. Text in corner reading "Stories of the long journey to PI diagnosis".

Undiagnosed: Gaslit and Gatekept

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Pink highlighter highlighting the word measles on a page

Study shows Ig therapy is protective against measles

Person researching funding on the computer

UCLA gene therapy researchers form public benefit corporation

Kelli Williams head shot

Work-life specialist with CVID serves Air Force trainees

korean handbook header 2

IDF Patient & Family Handbook for Primary Immunodeficiency Diseases, Sixth Edition (Korean)

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Medicare Ig therapy coverage decision tree.

Medicare Ig therapy coverage flowchart

Nurse examining patient with text: "Decoding PI: The science of gene therapy and gene editing".

Decoding PI: The science of gene therapy and gene editing

thumbnail for the ChronicXTwenties podcast which features three circles of Immune Deficiency Foundation colors, and the text "young adulthood, rare disease, and the joy you deserve".

ChronicXTwenties: Transitioning from pediatric to adult care with Riley and Nick

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Rare Disease Diversity Coalition

https://www.rarediseasediversity.org/

Immune Deficiency Foundation
7550 Teague Road, Suite 220
Hanover, Maryland 21076

P: 410-321-6647