Ataxia-telangiectasia (A-T)
Ataxia-telangiectasia (A-T) is an autosomal recessive disorder that causes neurological symptoms (like unsteady gait), dilated corkscrew-shaped blood vessels in the white of the eyes and on sun-exposed skin, combined immune deficiency, and high risk of cancer.
Project ECHO clinician series: What have we learned?
July 24, 2023
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Health plan cost comparison worksheet
July 21, 2023
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Personal health experience stat sheet
July 21, 2023
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NIH, IDF support young adult in his journey with PI
July 19, 2023
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Volunteer as a community liaison
Your time and talents can transform the lives of others.
The Assistance Fund
The Assistance Fund is an independent 501(c)(3) organization that helps patients and families facing high medical out-of-pocket costs by providing financial assistance for their copayments, coinsurance, deductibles, and other health-related expenses.
Study shows newborn screening improved SCID survival rates
July 13, 2023
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Good Days
Good Days is a national non-profit charitable organization that lifts the burdens of chronic illness through assistance, advocacy, and awareness. Their financial assistance program for people with chronic granulomatous disease (CGD) providers up to $3500 for medication costs.
