The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
On September 7, 1949, Pixie Pixler was born eight weeks prematurely at a time when many preemies didn’t survive. Even though born premature, Pixie seemed perfectly healthy and happy. It wasn’t until she turned a year old when she began to have recurrent infections that caused her to have her tonsils removed. Despite becoming sick on numerous occasions and needing much more sleep than her other four siblings, Pixie lived a normal life attending public schools in northern Illinois, going to college in southeastern Wisconsin, and moving to Minnesota to get married and continue Master’s course work. While working on her Masters, she began teaching and raising a family.
At the start of Pixie’s career, she bounced around, teaching in various rural and suburban districts until she landed in a large urban school district where she spent teaching for 22 years. As Pixie taught through the years, she began to have more persistent infections. Pixie states, “I had almost continuous infections October through May those last five years of teaching.” These infections eventually caused her to take a short and then long term disability leave in 2007.
A year after going on long term disability, Pixie was diagnosed with Common Variable Immune Deficiency (CVID) after receiving an intake and lab draw of 39 vials. A month later, she received her first treatment of intravenous immunoglobulin (IVIG) and learned about the Immune Deficiency Foundation (IDF). Pixie says, “I was 59, and I was so relieved to finally have some answers, but also had so many questions.”
Over the years, Pixie has received many answers to the questions she’d been craving to receive. She became actively involved in IDF by volunteering and attending conferences.
Pixie states, “I don’t know where I’d be, or how I would have coped without the support of IDF. I am so much better informed, less anxious, and healthy because of my involvement. I want IDF to be there and continue their great work.”
As a thank you, this year, Pixie has donated $800 towards IDF. She says, “This year, I donated more than I ever have to IDF because they are doing so much for us that no one else is…. advocating, educating, supporting, and connecting us. So many activities that would have impacted my budget this year have not been available, so I have the means to donate more, which I hope to continue in the coming years.”
Thank you, Pixie, for your continuous support. We appreciate all you have done for IDF, and we hope to continue to serve the PI community for many more years to come.
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The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life for every person affected by primary immunodeficiency.
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