Primary immunodeficiency in the world of pageants

A member of our IDF community, Trena Myers, is proudly wearing her zebra stripes in the world of pageantry, raising awareness for those affected by primary immunodeficiency (PI). Trena first began competing in pageants in 1998. She enjoyed pageantry but could never understand her purpose for doing them. Without having a purpose, in 2009 she decided to take a break. 

During this break, Trena struggled with numerous infections and a weakened immune system. This turned into a decade of misdiagnosis, causing her to struggle emotionally and physically. It wasn’t until 2017 that Trena was finally diagnosed properly with Hypogammaglobulinemia. After her diagnosis, Trena turned to art as a way to cope with her disorder, relieving much of her stress and anxiety. This ultimately gave her the passion and reason to compete in pageants once again. 

Trena’s pageant platform is emotional wellness. She discusses her PI with others as a way to raise awareness and uses it as a common ground to discuss the challenges that people face day-to-day. Her goal is to educate others on those living with PI, along with helping people cope with the daily stresses of life. 

Today, Trena volunteers for the Immune Deficiency Foundation (IDF) to support the PI research initiatives. She has participated in IDF Walk for PI for the past two years in Atlanta, GA to help improve diagnosis and access to treatment for those with PI. Each year, Trena has a blast at the walks, feeling the energy and power of the IDF community. She is especially excited to think creatively; the walks are virtual this year and can reach people globally. 

Trena is honored to be named Ms. Woman Georgia United States 2020 and is hoping to use her title as a way to raise awareness and funds for IDF. Trena states, “My purpose is to be a voice to help others connect with their inner self and empower them to show their uniqueness. Life is just like a canvas, you can make even the muddy colors become a beautiful work of art.”