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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Seniors with primary immunodeficiency require extra care

October 31, 2022
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A SCID Compass retrospective

October 31, 2022

Get Connected Groups unite primary immunodeficiency community

October 30, 2022
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Bone marrow transplant shows promise for chronic granulomatous disease

October 22, 2022
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IDF Lunch & Learn: Hemophagocytic lymphohistiocytosis (HLH)

October 17, 2022

Gene therapy for ADA-SCID shows promise

October 13, 2022
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SCID Compass Lunch and Learn: An ADA-SCID gene therapy update

October 06, 2022
Top of the fall 2022 edition of the IDF ADVOCATE.

Fall 2022 IDF ADVOCATE Newsletter

October 05, 2022
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Plasma supply update: Remaining proactive on a critical issue

October 05, 2022
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Family planning after SCID

October 05, 2022

PI Conference explores links between fatigue and PI

October 04, 2022
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Update - Monkeypox may be a threat to immunocompromised on current trajectory

October 04, 2022
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B cells slow to replenish after BMT for SCID

September 30, 2022
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Antibody deficiency: What does it mean?

September 29, 2022
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Journal chronicles bone marrow transplant for CGD

September 29, 2022
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Navigating access to quality care with primary immunodeficiency

September 28, 2022

XLA Life supports community with content, webinars, research

September 27, 2022

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.