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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Pre-med student Victoria Medl, who has PI, eyes a career in immunology.

Young adult volunteer and pre-med student eyes career in immunology

June 15, 2023
IDF Podcast Graphic

Transitioning from pediatric to adult care with Dr. Lauren Sanchez

June 05, 2023
IDF video

Lunch & Learn: Transitioning from pediatric to adult care

June 05, 2023
Project ECHO. Health worker with patient

Project ECHO clinician series: Comorbidities and PI

June 05, 2023
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PI research grants span diagnosis, T cell biology, and new treatments

June 02, 2023
Gene editing strategy for XLA with Dr. Donald Kohn's headshot.

Blaese awardee is developing a gene editing strategy to treat XLA

June 02, 2023
Jirsa Friends

Young adult with CVID strives to improve others’ lives

May 30, 2023
Project ECHO. Health worker with patient

Project ECHO clinician series: Newborn screening for SCID

May 22, 2023
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Bone marrow transplant restores health of boy with CGD

May 18, 2023
IDF video

Lunch and Learn: Congenital Athymia

May 10, 2023
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Primary immunodeficiency patient registry moves into a new era

May 09, 2023
Project ECHO. Health worker with patient

Project ECHO clinician series: Treatment options for the PI community

May 08, 2023
Person typing on a computer

Paper explores implementation of newborn screening for SCID and other conditions

May 05, 2023
Person typing on a computer

What the end of the public health emergency means for those with PI

May 04, 2023
Person typing on a computer

Update - Support the HELP Copays Act and fight unfair copay accumulators

May 02, 2023
undiagnosed podcast graphic

Undiagnosed episode 2: "The gardner"

May 01, 2023
Woman dancer holding arms out

Dancer with Wiskott-Aldrich syndrome wins Arnold fitness contest

April 28, 2023
IDF video

Lunch & Learn: APDS: What it is, isn't, and how it differs from other primary immunodeficiencies

April 28, 2023

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.