Make mental health a priority in primary immunodeficiency care
A primary immunodeficiency (PI) diagnosis causes added stressors, so it’s crucial to maintain your emotional well-being as you progress in your PI journey.
Read MoreGastrointestinal disorders common in primary immunodeficiency
Those with primary immunodeficiency (PI) who suffer from gastrointestinal disorders should seek a provider who can determine why the PI is causing symptoms so that proper treatment can be administered.
Read MoreNew campaign offers important personal perspective for the immunocompromised community and COVID-19
As you may have seen, the team at the Immune Deficiency Foundation (IDF) has been brought on board as a partner to the national campaign called ‘Up the Antibodies’ aimed at raising awareness of the challenges facing the immunocompromised community. As part of that effort, IDF VP of Communications, Tammy Black, and I were invited to New York in
Read MoreSCID bone marrow transplant can result in chronic long-term health effects
While bone marrow transplant is a lifesaving treatment for those with severe combined immunodeficiency, it can cause long-term health problems.
Read MoreFrom plasma to copay accumulators, IDF achieves advocacy wins
IDF advanced multiple advocacy issues in 2022 from securing specific public health guidance to combatting copay accumulators, marking significant wins for the primary immunodeficiency community.
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