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November 15, 2019

What You Need to Know About Health Insurance before the End of 2019

POSTED BY: mtewey

As the end of 2019 approaches, there are certain questions you need to ask yourself about your health insurance. Regardless of how you and your family obtain your health insurance, it is ultimately your responsibility to understand your plan. It is up to you to choose the plan that is right for you and your family’s healthcare needs.

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November 15, 2019
Awareness, Plasma Partners Program

PI Community Rallies to Promote Plasma Donations

POSTED BY: rdelaney

With the recent plasma shortage, the primary immunodeficiency disease (PI) community has mobilized in a variety of ways to create awareness of the importance of plasma donations. Since earlier this year, IDF began putting out the call for help and we have welcomed more than 30 new Plasma Awareness Volunteers to our existing team of 160. These

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November 15, 2019
Living with CGD

Don’t Miss Your Opportunity to Share Your Experiences!

POSTED BY: idfAdmin

There is still time to complete the Immune Deficiency Foundation’s (IDF) first-ever Chronic Granulomatous Disease (CGD) Survey. All adults with CGD and parents of children with CGD are eligible to participate. Stem cell transplant and gene therapy recipients are also eligible to participate. Please check your inbox and spam/junk folders!

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November 08, 2019
In the News

ABC TV’s The Good Doctor - 11/11/19 - Significant Concerns Over Portrayal of Primary Immunodeficiency Diseases

POSTED BY: AFreestone

IDF has been alerted to the fact that the episode of The Good Doctor airing on ABC TV on Monday, November 11, 2019 will feature a storyline about a person living with a primary immunodeficiency disease (PI). While this type of exposure can lead to increased awareness of PI, sadly it appears that this show will end up being another in a long line

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November 07, 2019
In the News

Urgent: Biologic Withdrawal Information for Gamunex

POSTED BY: AFreestone

Grifols Therapeutics LLC has initiated a voluntary withdrawal of Gamunex.Click here to read the notification from the Patient Notification System.  

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