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August 30, 2019
Awareness

Get the Latest News on the Immunoglobulin Product Shortage

POSTED BY: rdelaney

Over the last few months, IDF has fielded hundreds of calls and e-mails about challenges individuals with  PI are facing in accessing immunoglobulin (Ig) products. On August 12, the Food and Drug Administration (FDA) addressed the product shortage, and how it could impact patient care. The supply of donated plasma and the products produced from it

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August 30, 2019
Walk for PI

Who Will Join Your Herd?

POSTED BY: rdelaney

IDF Walk for PI It’s back-to-school time! Whether you’re a student or a parent of a student, you’ll be meeting new peers and teachers, making new friends, and/or reuniting with people you haven’t seen throughout the summer. This is a great time to ask people to join your IDF Walk for PI team! Haven’t created your walk team yet? There’s still

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August 30, 2019
Advocacy

Become a Better Informed, More Active Advocate for the PI Community

POSTED BY: rdelaney

IDF Advocacy Workshop 2019 – Massachusetts Do you or a loved one have a primary immunodeficiency disease (PI), live in Massachusetts and want to strengthen your advocacy skills? On Tuesday, October 8, 2019, IDF will be hosting a state advocacy workshop in Boston, MA for members of the PI community. This interactive workshop will give you a chance

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August 30, 2019
Research

Chronic Granulomatous Disease (CGD) Survey Will Launch Soon!

POSTED BY: rdelaney

Your Input Creates a Better Understanding of CGD The first-ever Chronic Granulomatous Disease (CGD) Survey from IDF will be available in September 2019! This survey will be emailed to individuals and families affected by CGD. This is a collaborative effort between IDF and the CGD Association. Participating in the CGD Survey will help us to better

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August 30, 2019
Fundraising

The Power of Giving Your Way

POSTED BY: rdelaney

While IDF is known by many in the PI community for our resources and support, we do so much more. We provide opportunities for individuals living with PI to connect, we support research and medical programs that can improve the diagnosis and treatment of PI, we work with experts in their field to create publications that will benefit the PI

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