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January 26, 2021
Living with CGD

Financial Assistance Available

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The Assistance Fund, a charitable patient assistance organization founded in 2009, is currently accepting new patient enrollments for those with Chronic Granulomatous Disease (CGD). The program provides financial assistance for prescription drug costs, health insurance premiums, therapy administration costs, lab/genetic testing, treatment-related

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January 21, 2021
SCID, SCID Compass

Video Spotlights SCID Treatment Basics

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When parents receive a diagnosis of severe combined immunodeficiency (SCID) for their baby, they don’t have much time to make a treatment decision. The sooner the baby is treated, the less chance the baby will develop an infection. Because babies with SCID have no functioning immune system, an infection could be life-threatening. Infection also

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January 20, 2021

Genetics and the Immune System

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Problems in the genetic code cause primary immunodeficiency, and while we can’t identify all the genes connected to the more than 400 disorders which affect the immune system, we do at least know some of them. And that’s a start, according to Dr. Lori Broderick, an allergist/immunologist at Rady Children’s Hospital San Diego and assistant

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January 13, 2021
SCID, SCID Compass

A Closer Look at Newborn Screening

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A few drops of blood from a newborn can reveal so much about the health of a baby. The testing of those blood droplets, along with tests for hearing loss and critical congenital heart conditions, comprise a routine newborn screening. And while the hearing test and heart test are relatively simple evaluations, the blood screening is more complex

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January 13, 2021

Mail delays are continuing into 2021

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The United States Postal Service is experiencing unprecedented volume increases and limited employee availability due to the impacts of COVID-19, causing major delays in IDF’s 2020 end-of-year letter and other mailings. If you have already donated towards IDF or are wondering why you received a letter or mailing with the year 2020 on it, please

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