You are here

November 30 2018
Community, Walk for PI

Keep Fundraising for IDF Walk for PI until December 31!

POSTED BY: rdelaney

Raise your hand if you knew that you can raise funds for IDF Walk for PI until the end of the year! Raise your hand if you knew that you can raise funds for IDF Walk for PI until the end of the year! Yes, that’s right! You may have crossed the finish line for IDF Walk for PI, but there is still time to reach your fundraising goals this year. If

Read More
November 30 2018
PI

You Still Have Time to Complete the IDF 2018 National Ig Treatment Experiences and Preferences Survey!

POSTED BY: rdelaney

Your Input Creates a Better Understanding of Immunoglobulin (Ig) Replacement Therapy Last month, the IDF 2018 National Ig Treatment Experiences and Preferences Survey was mailed to select households. Co-developed with immunologists, the survey specifically focuses on patients’ experiences with intravenous immunoglobulin replacement therapy (IVIG

Read More
November 30 2018
Patients

Since You Asked: Question & Answer (November 2018)

POSTED BY: rdelaney

This article originally appeared in the IDF monthly e-newsletter, Primary Immune Tribune. Click here to subscribe. Question 1: My son is shopping for a health plan in the Marketplace. He is worried he will not be able to afford his treatment if he picks a plan that does not have good coverage for IVIG therapy. What should he be looking for? How

Read More
November 27 2018
Uncategorized

Pioneering researcher of X-SCID Dr. Brian Sorrentino dies

POSTED BY: rdelaney

Click here for more about the life and work of Dr. Brian Sorrentino, a pioneering researcher at St. Jude’s.

Read More
November 19 2018
Healthcare Reform

Health Insurance: What You Need to Know before the End of the Year

POSTED BY: rdelaney

As the end of 2018 approaches, there are certain questions you need to ask yourself about your health insurance. Regardless of how you and your family obtain your health insurance, it is ultimately your responsibility to understand your plan. It is up to you to choose the plan that is right for you and your family’s healthcare needs.

Read More