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November 16, 2022
SCID, SCID Compass

SCID uncertainty paper examines how parents cope

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A recently published paper, “Parental coping with uncertainties along the severe combined immunodeficiency (SCID) journey,” sheds light on the strategies parents employ to navigate the challenging terrain of a life-threatening diagnosis for their child.

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November 14, 2022
Peer Support

IDF Peer Support volunteers provide encouragement and assistance

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IDF’s Peer Support program connects volunteers affected by primary immunodeficiency (PI) with members of the PI community seeking someone with whom to share their experiences.

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November 14, 2022
COVID-19, In the News

Update - Evusheld likely ineffective for BQ.1, BA.4.6, and other COVID-19 variants

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November 14, 2022 - Evusheld updates: NIH warns that Evusheld is likely ineffective against COVID-19 Omicron subvariants BA.2.75.2, BA.5.2.6, BF.7, BQ.1, and BQ.1.1, which represent up to 61% of current U.S. infections.

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November 11, 2022
Awareness

IDF joins Emily V. Gordon & Kumail Nanjiani for new campaign

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IDF sits down with Emily V. Gordon and Kumail Nanjiani as part of the Up The Antibodies campaign to bring hope to immunocompromised Americans

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November 01, 2022
PI

List of genetic variants that cause primary immunodeficiency expands

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The International Union of Immunological Societies has added 56 genetic variants to its list of inborn errors of immunity (IEI), also known as primary immunodeficiencies, bringing the total to 485 disorders.

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