You are here

September 03, 2020
SCID Compass

Journey to Alexa's Life Day

POSTED BY:

  This blog post is part of IDF’s Stories Project, designed to provide a venue for those living with PI to share their experiences. Some are first-person accounts, others are written by IDF staff. If you have a story you’d like to share, email us at stories@primaryimmune.org. In this Stories Project blog, Michelle Lamonica describes her fear,

Read More
August 31, 2020
Awareness

Plasma Hero Launched

POSTED BY:

Increased global demand combined with a drop in donations during the COVID-19 pandemic has raised alarm bells for many who rely on plasma-derived therapies. In response, The Immune Deficiency Foundation has created PlasmaHero (www.plasmahero.org), an initiative designed to educate the general public on the critical need for plasma and to connect

Read More
August 28, 2020
Education

Ease Isolation with Creative Connections

POSTED BY:

Like all of us managing life during the pandemic, Becky Wang finds herself and her family isolated from loved ones and the world at large. She also understands what it’s like to be part of the PI community and the added stress that can bring in these unsettling days. Becky’s 16-year-old son has a PI. Still, the licensed professional counselor

Read More
August 27, 2020
Education

Which Ig Therapy is Right for You?

POSTED BY:

When Dr. Richard Wasserman prescribes immunoglobulin (Ig) therapy for his patients with primary immunodeficiency, he doesn’t feel bound by the recommended dose listed on the package inserts of the product. Instead, he considers the person’s biological trough – that is, how much Ig it takes to keep his patient free from infection. Dr. Wasserman’

Read More
August 25, 2020

Primary Immunodeficiency in the World of Pageants

POSTED BY: rdelaney

A member of our IDF community, Trena Myers, is proudly wearing her zebra stripes in the world of pageantry, raising awareness for those affected by primary immunodeficiency (PI). Trena first began competing in pageants in 1998. She enjoyed pageantry but could never understand her purpose for doing them. Without having a purpose, in 2009 she

Read More