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November 13, 2020
Education

Managing Sinus Issues

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What is the second most prevalent chronic health problem in the U.S.? Sinusitis, which affects up to 30 million people annually and results in healthcare costs of $3.4 billion each year. “It’s a big problem, particularly for those with primary immunodeficiency,” said Dr. Gary Kleiner. In his October 8 IDF Forum presentation, “Managing Sinus

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November 13, 2020
Advocacy

Now that the election is over...

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While there are still some unknowns after the 2020 election, one thing is definite: the Immune Deficiency Foundation (IDF) will continue to work towards our mission of improving the diagnosis, treatment, and quality of life of people affected by PI. As policy changes are implemented in 2021 with newly elected officials, IDF will continue to work

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November 12, 2020
SCID, SCID Compass

Improving SCID Newborn Screening

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State public health laboratories could benefit from making improvements in how they proceed after determining positive newborn screening (NBS) results for severe combined immunodeficiency (SCID), according to a research article in the medical journal Frontiers in Immunology. SCID is characterized by a lack of T cells which leaves babies vulnerable

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November 09, 2020

Urgent Need for Plasma Donations

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Statement from John G. Boyle, IDF President & CEO as part of the IDF National Summit Since the onset of COVID-19, our team at IDF has continued to monitor the impact the pandemic is having on global and domestic source plasma supply levels. In particular, we are concerned about how the drop in supply will translate to reduced availability of 

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November 06, 2020
Education

Navigating Medicare

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What is Medicare, and how does it support the primary immunodeficiency community? Nichole Clark, Associate Director of Patient Advocacy at the Immune Deficiency Foundation, addressed that topic on Oct. 1 during an IDF Forum entitled, “Medical Insurance: Navigating Your Access to Care.” Medicare is a federal health insurance program that offers

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