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June 15, 2022
Community

New encrypted email system to protect the exchange of information

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While IDF is not a medical system or healthcare provider, we take protecting constituent data and privacy very seriously. We have implemented a new protocol to encrypt any emails that contain either personal health information (PHI) or personally identifiable information (PII).

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June 13, 2022
SCID, SCID Compass

Cindy Kisik, adult with ADA-SCID, advocates for mental health awareness

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Cindy Cutshall-Kisik, the second person in the world to receive gene therapy for ADA-SCID, is now an advocate for mental health awareness, working to educate children and young adults on the importance of sharing when they are sad or anxious.

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June 05, 2022
Teen Escape

Teen and young adult event returns to in-person

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Set for July 22-24 at the Chicago Marriott Oakbrook in Chicago, the IDF Teen & Young Adult Escape is an opportunity for teens ages 13-17 and young adults ages 18-25 to come together and meet others who understand what it’s like to be a young person with PI. The Teen & Young Adult Escape kicks off on Friday, July 22 at 5:30 p.m. with

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June 03, 2022
SCID, SCID Compass

Registration open for the SCID Compass Summit

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Registration is open for the fourth annual SCID Compass Summit, set for June 23-24, from 11 a.m. to 3 p.m. each day. The two-day virtual event is free and offers an opportunity for connection, learning, and sharing of ideas about severe combined immunodeficiency (SCID).

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June 01, 2022
COVID-19

¡Covid Tracker en Español ya está disponible!

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El CDC ahora tienen el rastreador de Covid-19 en Español. Puede realizar un seguimiento de las tendencias locales en todo el país.

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