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March 19, 2019
Walk for PI

Save the Date for IDF Walk for PI 2019!

POSTED BY: mtewey

Grab your calendars and get excited, IDF community! We're officially announcing the locations of IDF Walk for Primary Immunodeficiency 2019. We've nearly doubled our walks, expanding the impact that we can make on people living with primary immunodeficiency diseases - all with your help, of course! National Walks (A-Z) Boston, MA: Sunday,

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March 06, 2019
Community

PI Community Represented at Senate Committee Hearing on Preventable Diseases and Vaccines

POSTED BY: rdelaney

On Tuesday, March 5, 2019, the Senate Committee on Health, Education, Labor and Pensions held a hearing to discuss the recent outbreak of preventable diseases and the need for vaccinations in the U.S. Community immunity, also known as herd immunity, is a pivotal issue for people with primary immunodeficiency diseases (PI), and it was important

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February 28, 2019
Awareness

Since You Asked: Question & Answer (February 2019)

POSTED BY: rdelaney

This article originally appeared in the IDF monthly e-newsletter, Primary Immune Tribune. Click here to subscribe. Question 1: I have not traveled outside of the U.S. since I was diagnosed with Common Variable Immune Deficiency (CVID). I am planning a trip abroad and need to know what precautions I should take prior to traveling? Should I get the

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February 22, 2019
Patients

Urgent: Biologic Withdrawal Information for Gamunex C 10%

POSTED BY: rdelaney

Grifols Therapeutics LLC has initiated a voluntary withdrawal of Gamunex C 10%. Click here to read the notification from the Patient Notification System. 

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February 15, 2019
SCID

SCID Compass – An Educational Program of the Immune Deficiency Foundation

POSTED BY: rdelaney

SCID Compass, an educational program of the Immune Deficiency Foundation (IDF), seeks to improve outcomes for infants with Severe Combined Immunodeficiency (SCID) by enhancing access to and use of educational resources, providing linkages to critical services for patients and families, and developing protocols and mechanisms for long-term follow

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