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April 26, 2021
Awareness, Community, In the News

COVID-19 Vaccine Immune Response Study

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The National Institute of Allergy and Infectious Diseases (NIAID) at the National Institutes of Health (NIH) in Bethesda, Maryland is seeking individuals 16 years and older who have an immune deficiency. We are conducting a research study to assess the immune responses to the SARS-CoV-2 (COVID-19) vaccination in patients with various immune

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April 23, 2021
Education

College Panelists Advise Teens

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As a college freshman with a primary immunodeficiency, Darcy Gott provided the school’s accessibility team with documents supporting her need for accommodations. Darcy requires the flexibility to make up missed work without penalties if she is absent due to illness. Still, every year she has to ensure that professors understand her

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April 16, 2021
SCID, SCID Compass

SCID Video Focuses on Post-Treatment

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A newly created SCID Compass video explores how a family copes with the days and months after a marrow transplant as they wait for their child’s body to accept the new donor cells. The video, entitled “Coping with Post-Treatment,” is the fourth in a series created by SCID Compass partner Genetic Alliance Expecting Health. The series is designed

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April 14, 2021

Urgent: Biologic Withdrawal Information for Hizentra®

POSTED BY: mtewey

CSL Behring instituted a voluntary recall of one lot of Hizentra®    

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April 09, 2021
SCID, SCID Compass

Shape the Future of SCID Compass

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Would you like to have a significant impact on the direction of the SCID Compass program? We promise it’s quick and easy and will only take a few minutes of your time. The SCID Compass program recently launched its SCID Demographics and Programming Questionnaire. The survey contains about a dozen questions designed to find out what type of

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