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January 03, 2022

Urgent: Withdrawal Information

POSTED BY: mtewey

Please see the following voluntary withdrawal information below: 

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December 20, 2021
SCID, SCID Compass

International experts study SCID variants in the Irish Family

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The Irish Traveller population has a higher than average prevalence of severe combined immunodeficiency (SCID) and international SCID experts are collaborating to identify SCID variants and improve treatment.

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December 17, 2021
Living with CGD

Experts discuss bone marrow transplant for chronic granulomatous disease

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Hematopoietic stem cell transplant (HSCT), also known as bone marrow transplant (BMT), is a treatment option for children with chronic granulomatous disease (CGD), but caregivers and healthcare providers must weigh several factors before moving ahead with the procedure.

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December 17, 2021

Donor Spotlight: Tara Tisch

POSTED BY: rdelaney

Tara Tisch is a natural artist who also happens to be living with Common Variable Immune Deficiency (CVID). Throughout Tara’s life and diagnosis, she turned to art as a form of therapy.  

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December 17, 2021

IDF Partners with the Hyper IgM Foundation and Wiskott-Aldrich Foundation on Survey

POSTED BY: rdelaney

The Hyper IgM Foundation and the Wiskott-Aldrich Foundation’s first-ever international X-Linked Carrier Surveys are now available!

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