Volunteers Making a Difference
The Immune Deficiency Foundation is extremely grateful for the numerous individuals who volunteer their time and energy to make a difference for those affected by primary immunodeficiency (PI). Even during the difficult times, IDF can continue to advocate for, support, and serve the PI community, thanks to the 506 active volunteers that are
Read MoreKeegan Care Packages provide hope in the midst of COVID-19
Meet Keegan Concannon, a 15-year-old boy who became a member of our IDF community after being diagnosed with Common Variable Immune Deficiency (CVID). Keegan is constantly inspiring us by advocating for the PI community to his state legislators and by participating in our annual Advocacy Day. However, this time he is inspiring us in a different
Read MoreIDF Launches New Ig Product Booklet
IDF has launched a new and improved resource for individuals living with PI who rely on immunoglobulin (Ig) treatment, Characteristics of Ig Products Used to Treat PI Licensed for Use in the US. Formerly presented as an Ig product chart, the information has been updated to a booklet with an all-new look, the latest up-to-date information and
Read MoreStatement of Patient Support
As a part of the Immune Deficiency Foundation (IDF)’s mission to improve the diagnosis, treatment, and quality of life of persons with primary immunodeficiencies (PI), the IDF supports policies and actions that ensure that patients with PI have access to health coverage and appropriate medical care. While strides have been made to increase health
Read MoreApril Showers Bring May Flowers…and Exposures
Dangers of Springtime Exposures for People with CGD April’s arrival means that the much-anticipated sights and sounds of spring and summer are just around the corner. But springtime also ushers in seasonal challenges for people living with chronic granulomatous disease (CGD). Being diagnosed with CGD doesn’t mean you have to stay indoors, but a
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