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July 08, 2022
Education

Ig replacement therapy is as individual as you

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Dr. Elizabeth Younger sees hundreds of patients who require immunoglobulin (Ig) replacement therapy and no two use the same brand, amount, and type of administration.

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July 07, 2022
Teen Escape

Agenda set for July Teen and Young Adult Escape

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The agenda is set for the IDF Teen & Young Adult Escape, an opportunity for teens ages 13-17 and young adults ages 18-25 to come together and meet others who understand what it’s like to be a young person with PI. Set for July 22-24 at the Chicago Marriott Oakbrook in Chicago,  the Teen & Young Adult Escape kicks off on Friday, July 22 at

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July 01, 2022
Education

Continuing education courses offered for physicians

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The following educational opportunities are jointly provided by Postgraduate Institute for Medicine and PlatformQ Health Education, LLC, working in collaboration with the National Organization for Rare Disorders, Inc. (NORD) and the Immune Deficiency Foundation (IDF).

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June 30, 2022
SCID, SCID Compass

Congenital athymia diagnosis begins at newborn screening

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Learn how congenital athymia is diagnosed and treated, and what causes this rare immunodeficiency by tuning into "Congenital Athymia 101," an IDF forum presented by Dr. Elena Hsieh, University of Colorado School of Medicine Associate Professor of Pediatrics, Section of Allergy and Immunology, and Department of Immunology and Microbiology Director

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June 24, 2022
Living with CGD

Study finds CGD carriers exhibit symptoms of disorder

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A chronic granulomatous disease (CGD) carrier study that involved the Chronic Granulomatous Disease Association of America (CGDAA) and the Primary Immune Deficiency Treatment Consortium (PIDTC) shows that female CGD carriers suffer from the same symptoms as those diagnosed with the disorder and recommends that CGD carriers seek diagnosis and

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