Living with primary immunodeficiency
Living with primary immunodeficiency (PI) can feel isolating, but you don't have to go through it alone. You can connect with other adults living with PI and find support, encouragement, and understanding.
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Understanding primary immunodeficiency (PI)
Understanding PI
The more you understand about primary immunodeficiency (PI), the better you can manage it. Learn about PI diagnoses and treatment options.
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Living with PI
Living with PI
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
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Get involved
Get involved
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
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Advancing research and clinical care
Advancing research and clinical care
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), these resources will help you advance the field. Get details on surveys, grants, and clinical trials.
Decoding PI: Vaccines and the PI community
Join us on October 29 at 7:00 pm ET for an expert discussion on the role of vaccines in the immunocompromised community. Michael Keller, M.D., and Kelli Williams, M.D., MPH, will share insights on how vaccines are used to understand immune function and what current guidelines mean for individuals living with immune deficiency.
For caregivers of children with PI
Caregivers of children and teens with PI face numerous challenges, including helping their child understand their condition, managing medical treatments, and adjusting to life with a chronic condition.
Navigating health insurance
Understanding insurance coverage can be daunting, especially for those with a chronic illness like PI. The gathered resources to help you know your insurance options, navigate the claims process, and advocate for the coverage you need.
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