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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Bob LeBien and family

Bob LeBien’s leadership a guiding force for IDF and IPOPI

December 04, 2024
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Volunteer established PI education groups 33 years ago

May 08, 2024
SCID Accomplishments Pic

SCID Compass recognized for supporting families through newborn screening

October 13, 2023

Seniors with primary immunodeficiency require extra care

October 31, 2022
Person typing on a computer

Journal chronicles bone marrow transplant for CGD

September 29, 2022
Person typing on a computer

Guide for students with primary immunodeficiency updated for back-to-school season

August 23, 2022

Cindy Kisik, adult with ADA-SCID, advocates for mental health awareness

June 13, 2022
Person typing on a computer

Workplace accommodations for the immunocompromised as pandemic wanes

March 30, 2022
Person typing on a computer

Toolkit offers quick access to SCID diagnosis and treatment

February 19, 2022
Cropped stock photo from handbook cover.

IDF Patient & Family Handbook for Primary Immunodeficiency Diseases, Sixth Edition

June 30, 2019
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Chapter 1: The Immune System and Primary Immunodeficiency Diseases

June 30, 2019
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Chapter 2: Antibody Deficiency with Absent B cells

June 30, 2019
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Chapter 3: Common Variable Immune Deficiency Phenotypes

June 30, 2019
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Chapter 4: Selective Immunoglobulin Deficiency: IgA and IgM

June 30, 2019
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Chapter 5: Hyper IgM Syndromes

June 30, 2019
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Chapter 6: IgG Subclass Deficiency and Specific Antibody Deficiency

June 30, 2019

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.