Mission

The Immunocompromised Collaborative (ICC) represents the united voice of communities whose health status makes them most vulnerable to threats from infectious disease. We seek to inform federal and state policies to prevent the spread of infection and ensure that the needs of the immunocompromised are met.

Who we represent

The communities we represent are made up of a broad and diverse range of immunocompromised patient populations, including those with primary and secondary immunodeficiencies such as:

• Common variable immune deficiency (CVID) and other primary immunodeficiencies.
• Blood cancer and those with other cancers receiving CAR-T therapies or other immunosuppressive treatments.
• Autoimmune conditions, such as lupus, that are treated with immunosuppressive medications. 
• Organ and bone marrow transplant recipients who take immunosuppressive medications. 
• Elderly individuals and children and adults with disabilities or other chronic conditions that make them vulnerable to infectious diseases. 

Use the interactive map below to explore the number of immunocompromised people ages 0-64 in each state/territory. To see a breakdown of under 18 and 18-64, hover over (or tap and hold on mobile) a state/territory.

A new analysis of 2021 National Health Interview Survey (NHIS) data estimates the percentage of adults in the U.S. that are immunocompromised is 6.6%, slightly higher than the 6.2% rate used in the map above. 

Through our joint advocacy, we work to address the public health challenges that impact the vulnerable communities we serve.

Key focus areas

• Supporting policymakers’ efforts to promote widespread immunization and raise awareness for the importance of adequate uptake of vaccinations to protect those who are immunocompromised. 
• Supporting legislative and executive actions to ensure immunocompromised individuals have full access to necessary healthcare services and treatments, including alternative care settings or formats.
• Representing immunocompromised populations in meetings with federal or state policymakers and elected officials, including serving as advisors to officials regarding establishing public health policies.
• Providing written comments to agencies on issues impacting the immunocompromised populations.