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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

IDF Testimony - Colleen

December 20, 2016

IgG subclass deficiency - IDF Reel Stories, Salvatore Ventrice

December 06, 2016

Felix's story: A 7-year-old living with PI

November 30, 2016
Clayton Cowan and his brother celebrate.

Catching up with Clayton Cowan

September 30, 2016
Ben crosses the Walk for PI finish line.

IDF Walk for PI’s impact on 3-year-old Ben and his teammates

May 26, 2016

IDF young adult advocating for change: Part two – This is just your prologue

February 22, 2016
David Vetter in his protective environment at Texas Children's Hospital in May 1979.

The story of David Vetter

February 04, 2016
Marty and Clayton Cowan.

Mom aimed to find joy in every moment during transplant

January 27, 2016
Thaddaeus Brown holds a baseball.

Each day is a gift for this mother and son

November 06, 2015

Common variable immune deficiency (CVID) - IDF Reel Stories, Myra McChriston

September 07, 2015

X-linked agammaglobulinemia (XLA) - IDF Reel Stories, The Chauvin family

September 07, 2015

Hypogammaglobulinemia - IDF Reel Stories, Susan Smith

September 07, 2015

Chronic granulomatous disease (CGD) - IDF Reel Stories, The Fernandez family

September 07, 2015
Person typing on a computer

From patient to new mom: A CGD carrier’s experience

July 17, 2015
Person typing on a computer

Taking chronic granulomatous disease in stride

May 29, 2015
Rocco Fernandez.

Rocco celebrates his fifth year post-transplant

May 13, 2015
Person typing on a computer

Living with chronic granulomatous disease as a mom

February 09, 2015

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

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Coordinated support groups, events, and one-on-one connections ensure that you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.