You are here

CGD News

CGD News

September 28, 2020
Living with CGD

Online CGD Community Fosters Connection

POSTED BY:

Chronic Granulomatous Disease (CGD) Online Community Creates a New Normal Several months have passed since the COVID-19 pandemic first prevented IDF Get Connected Groups (GCG) from meeting in-person across the country. Rather than wait for the pandemic to end, the Immune Deficiency Foundation (IDF) shifted its programming online. Such an

Read More
July 24, 2020
Living with CGD

New Scholarship Fund for Adults with Rare Diseases Now Accepting Applications

POSTED BY:

Discovering what you want to do with your life isn’t an easy task for anyone, especially for those with a chronic condition. While there may not be a step-by-step guide for figuring it all out, there is some help in this process. #RAREis Scholarship Fund is now accepting applications from adults living with rare diseases (17+), including chronic

Read More
July 20, 2020
Living with CGD

Telehealth in the Era of COVID-19 for CGD Patients

POSTED BY: AFreestone

COVID-19 has had a significant impact on the delivery of healthcare in the United States, particularly for those in the chronic granulomatous disease (CGD) community. Telemedicine was already a growing trend before the pandemic hit but with the ongoing health crisis, it has propelled these virtual services into the forefront. Many in the CGD

Read More
June 12, 2020
Living with CGD

Online Group for CGD Provides Community Support During the COVID-19 Pandemic

POSTED BY: AFreestone

Chances are that you belong to a few groups on Facebook. While many of these groups serve a crucial role for individuals looking for advice, there is something different about being able to meet, converse, and potentially make friends with someone who shares your experiences. To keep our community safe, the Immune Deficiency Foundation (IDF) has

Read More
May 13, 2020
Living with CGD

Making Needle Pokes Easier for the CGD Community

POSTED BY: AFreestone

Interferon (IFN) gamma is sometimes used in conjunction with antibiotics and other treatments as a preventative against infection for people with Chronic Granulomatous Disease (CGD). It is given by injection, usually several times per week. For some patients and parents, these needle pokes can be incredibly hard. If you are one of these

Read More