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CGD News

CGD News

March 30, 2021
Living with CGD

Determined to Keep Moving Forward

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In 1982, Antony and Alphonsa Raj sold everything they had and took their 7-year-old daughter Susanna to Canada, days after their youngest son, Savio, 6, died from infections resulting in fever, lung lesions, and kidney problems. Susanna also suffered from constant infections, and her older sister Sharmila died from infections at age 6. Doctors in

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March 17, 2021
Living with CGD

Help Us Better Understand CGD

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Help Us Better Understand Chronic Granulomatous Disease (CGD) Pinpoint Patient Recruiting is searching for USA-based individuals affected by Chronic Granulomatous Disease (CGD) to participate in a 20-minute online market research survey. The goal of the research is to learn more about the patient experience of those with CGD in order to help

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February 23, 2021
Living with CGD

Free Wellness Kits Available

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ANGEL AID is offering FREE Trauma-less Needle Pokes Wellness Kits to 150 patients and caregivers in the Chronic Granulomatous Disease (CGD), Cystinosis, and Urea Cycle Disorder (UCD) communities. Each Wellness Kit contains TOOLS, DISTRACTION CARDS, and SELF CARE AIDS to help patients get through their needle pokes with less pain and anxiety.

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January 26, 2021
Living with CGD

Financial Assistance Available

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The Assistance Fund, a charitable patient assistance organization founded in 2009, is currently accepting new patient enrollments for those with Chronic Granulomatous Disease (CGD). The program provides financial assistance for prescription drug costs, health insurance premiums, therapy administration costs, lab/genetic testing, treatment-related

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December 02, 2020
Living with CGD

For Ismael, it’s Just Three Letters

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What is chronic granulomatous disease (CGD)? Some see it as a rare disease, impacting the body’s ability to fight infection. Ismael has learned to view it as just three letters. Watch more of Ismael’s CGD Chronicles: You can watch more of Ismael's videos here: https://www.youtube.com/playlist?list=PL66fx-3BwAwuOeodvTxNUEaXx00tpdult

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