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CGD News

November 16, 2021
Living with CGD

Bone marrow transplant boosts health of boy with CGD

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Diagnosed with chronic granulomatous disease (CGD) within his first month of life, Brandon Wiehe struggled with inflammatory bowel issues and abscesses as a baby and into his toddler years. Brandon hugs mom Carly during an outing.   Pained by her son's suffering, and worried that the wrong infection could mean the end of Brandon’s life, his

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October 22, 2021
Living with CGD

Make mental health a priority

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Shane Brisson endured immense pain as a child with chronic granulomatous disease (CGD), and it took an emotional toll on him as an adult. During his elementary school years, Shane underwent surgery to remove infected glands. At age 12, he received a lung biopsy (which left a smiley face scar on his chest) after a bout with pneumonia. Doctors

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September 23, 2021
Living with CGD

Faith Guides Mom With CGD

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In her mid-20s, Amy Braselton ran a half marathon – one mile for every surgery she’s had as a result of infections caused by chronic granulomatous disease. Amy Braselton, right, and a friend celebrate the completion of a half-marathon.   For Amy, running is a freedom she never had as a child. Leg infections caused by CGD limited her mobility,

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August 30, 2021
Living with CGD

CGD Advocate Moderator At Rare of Rare Summit

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Five years ago, specialists at Duke University Hospital provided Sebastian Sancho, diagnosed with chronic granulomatous disease as an infant, with a new immune system through a stem cell transplant. Today, Sebastian is a healthy nine-year-old who enjoys riding his bike, skateboarding – and, of course, playing with friends. Sebastian also

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July 26, 2021
Living with CGD

Book Chronicles Struggle With CGD Diagnosis

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When 4-year-old Sebastian Sancho received donor stem cells that provided him with a new immune system, a wave of gratitude washed over his father, Miguel Sancho. Years of struggle fighting chronic granulomatous disease, CGD, came down to one relatively simple step in a complicated medical procedure to end the disease. “The moment we were in the

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