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CGD News

December 02, 2020
Living with CGD

For Ismael, it’s Just Three Letters

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What is chronic granulomatous disease (CGD)? Some see it as a rare disease, impacting the body’s ability to fight infection. Ismael has learned to view it as just three letters. Watch more of Ismael’s CGD Chronicles: You can watch more of Ismael's videos here: https://www.youtube.com/playlist?list=PL66fx-3BwAwuOeodvTxNUEaXx00tpdult

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November 30, 2020
Living with CGD

All About X-linked Carriers

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Get Your Questions Answered on CGD X-Linked Carriers The medical community is beginning to shine a little light on X-linked female carriers of Chronic Granulomatous Disease (CGD). Symptoms can range vastly from patient to patient, and many healthcare professionals remain unfamiliar with this rare genetic condition. The good news is that, as

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October 02, 2020
Living with CGD

Connection and Knowledge at Rare of the Rare

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IDF Rare of the Rare Summit Offers Comfort and Answers to the CGD Community   Dealing with a rare diagnosis such as Chronic Granulomatous Disease (CGD) is not for the faint of heart. Families living with CGD encounter unique challenges every day that require dedication and resilience to overcome those trials. IDF understands that these

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September 28, 2020
Living with CGD

Online CGD Community Fosters Connection

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Chronic Granulomatous Disease (CGD) Online Community Creates a New Normal Several months have passed since the COVID-19 pandemic first prevented IDF Get Connected Groups (GCG) from meeting in-person across the country. Rather than wait for the pandemic to end, the Immune Deficiency Foundation (IDF) shifted its programming online. Such an

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July 24, 2020
Living with CGD

New Scholarship Fund for Adults with Rare Diseases Now Accepting Applications

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Discovering what you want to do with your life isn’t an easy task for anyone, especially for those with a chronic condition. While there may not be a step-by-step guide for figuring it all out, there is some help in this process. #RAREis Scholarship Fund is now accepting applications from adults living with rare diseases (17+), including chronic

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