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CGD News

July 25, 2023
Living with CGD

Study examines procedure to treat severe CGD infections

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A new treatment for patients with X-linked chronic granulomatous disease (CGD) fighting infections that don’t respond to intensive antibiotics could be on the horizon—but researchers need help from members of the CGD community to complete a clinical trial. About 5% of individuals with CGD experience fungal and bacterial infections that don’t

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May 18, 2023
Living with CGD

Bone marrow transplant restores health of boy with CGD

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Harry McLachlan shows off his firefighter outfit while at a Sydney, Australia hospital where he received a bone marrow transplant. Bevan McLachlan tracked his son Harry’s health in a spreadsheet after learning the toddler had systemic juvenile idiopathic arthritis (SJIA). He monitored daily fevers, activity levels, and diet. “Because at that

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March 30, 2023
Living with CGD

Remember The Girls empowers women affected by X-linked conditions

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Taylor Kane, 25, is a carrier for adrenoleukodystrophy (ALD) and founder of Remember The Girls, a nonprofit that supports women impacted by X-linked conditions. ALD is a rare genetic condition that damages the membrane that covers nerve cells responsible for brain function, and Taylor’s father, John Kane, passed the condition to her. Diagnosed

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January 25, 2023
Living with CGD

Son with chronic granulomatous disease goes through BMT with family’s support

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Kathi Narlock still has the meticulous notes she kept on every fever, illness, medication, treatment, and diagnostic test her son Nick Narlock experienced during his childhood. Diagnosed with chronic granulomatous disease (CGD) as an infant, Narlock required hospitalization over a dozen times. His hospital stays lasted days to months and were

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December 08, 2022
Living with CGD

NIH clinical trial explores fecal transplant for CGD colitis

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About half of all people diagnosed with chronic granulomatous disease (CGD) develop colitis, an inflammatory bowel disease (IBD) that causes abdominal pain, diarrhea, fatigue, and unintended weight loss. Because traditional treatment such as steroids poses risk to people with CGD, researchers at the National Institutes of Health (NIH) aim to

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