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CGD News

January 25, 2023
Living with CGD

Son with chronic granulomatous disease goes through BMT with family’s support

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Kathi Narlock still has the meticulous notes she kept on every fever, illness, medication, treatment, and diagnostic test her son Nick Narlock experienced during his childhood. Diagnosed with chronic granulomatous disease (CGD) as an infant, Narlock required hospitalization over a dozen times. His hospital stays lasted days to months and were

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December 08, 2022
Living with CGD

NIH clinical trial explores fecal transplant for CGD colitis

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About half of all people diagnosed with chronic granulomatous disease (CGD) develop colitis, an inflammatory bowel disease (IBD) that causes abdominal pain, diarrhea, fatigue, and unintended weight loss. Because traditional treatment such as steroids poses risk to people with CGD, researchers at the National Institutes of Health (NIH) aim to

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November 29, 2022
Living with CGD

Family navigates toddler’s chronic granulomatous disease

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In August 2021, mom Crystal Cruz, dad Chahriar Assad, and their son Cyrus Bakhtiari took a family vacation and contracted COVID-19 on their trip. Mother and father developed symptoms but easily shook the virus. Cyrus, a toddler, didn’t fare as well. Cyrus Bakhtiari loves to practice hitting the ball. “He started to become very lethargic, just

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October 22, 2022
Living with CGD

Bone marrow transplant shows promise for chronic granulomatous disease

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The National Institutes of Health (NIH) has one of the largest single-center groups of persons in the world who have undergone bone marrow transplants for chronic granulomatous disease (CGD) in clinical trials, serving as an important resource for those diagnosed with CGD. At the Immune Deficiency Foundation’s (IDF) 2022 Primary

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September 29, 2022
Living with CGD

Journal chronicles bone marrow transplant for CGD

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Patrick Chew spent his childhood coping with infections and frequent hospitalizations. In his adult life, he developed additional complications in the form of autoimmune issues. All were caused by chronic granulomatous disease (CGD). Prophylactic antibiotics and antifungals and injections of gamma interferon decreased the frequency of infection

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