Discovering what you want to do with your life isn’t an easy task for anyone, especially for those with a chronic condition. While there may not be a step-by-step guide for figuring it all out, there is some help in this process. #RAREis Scholarship Fund is now accepting applications from adults living with rare diseases (17+), including chronic
Read MoreCOVID-19 has had a significant impact on the delivery of healthcare in the United States, particularly for those in the chronic granulomatous disease (CGD) community. Telemedicine was already a growing trend before the pandemic hit but with the ongoing health crisis, it has propelled these virtual services into the forefront. Many in the CGD
Read MoreChances are that you belong to a few groups on Facebook. While many of these groups serve a crucial role for individuals looking for advice, there is something different about being able to meet, converse, and potentially make friends with someone who shares your experiences. To keep our community safe, the Immune Deficiency Foundation (IDF) has
Read MoreInterferon (IFN) gamma is sometimes used in conjunction with antibiotics and other treatments as a preventative against infection for people with Chronic Granulomatous Disease (CGD). It is given by injection, usually several times per week. For some patients and parents, these needle pokes can be incredibly hard. If you are one of these
Read MoreTransitioning into adulthood is both exciting and overwhelming, often marked by changes and challenges. It is a time of discovering ownership, exploring educational and career paths, forming relationships, traveling, and taking responsibility for your healthcare. But living with a chronic condition, such as Chronic Granulomatous Disease (CGD),
Read MoreLiving with CGD is a program of the Immune Deficiency Foundation. This site is made possible by an unrestricted educational grant from:
