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CGD News

May 02, 2022
Living with CGD

CGD symptoms vary with superoxide production

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  Mutations in genes of persons with chronic granulomatous disease (CGD) affect the person’s production of superoxide, which in turn dictates the severity of CGD symptoms, according to a review of CGD by Dr. Jennifer Leiding and Dr. Steven Holland for the National Institute of Health’s National Library of Medicine. The six genes that can be

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March 25, 2022
Living with CGD

Advocacy, provider support critical in helping family cope with CGD

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For over a year, Diane Mato repeatedly took her toddler son Nicholas to doctors because of fevers that lasted weeks and severe urological problems that required a painful scope in his bladder and a catheter.  The Mato family includes, from left, dad Manny, Nicholas, Adrian, mom Diane, and Eric.   When symptoms returned despite the medical

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March 08, 2022
Living with CGD

PBS program highlights CGD diagnosis and treatment

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  A PBS health program focusing on chronic granulomatous disease (CGD) is now available on YouTube. Part of the PBS Exploration Health educational series, the 15-minute piece examines the science of chronic granulomatous disease (CGD), profiles persons living with CGD, interviews doctors serving the CGD community, and explores the various

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February 28, 2022
Living with CGD

'Take the reins of your own healthcare'

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Casey Warford is a patient peer mentor, and every few months he speaks to persons living with chronic granulomatous disease (CGD) and their families about the importance of taking medicine to reduce chances of infection. Casey Warford, diagnosed with CGD, is a patient peer mentor. Warford, diagnosed with CGD, pays particular attention to the

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January 07, 2022
Living with CGD

Drug prevents major bone marrow transplant complication

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The Food and Drug Administration (FDA) recently approved Orencia for use in the prevention of graft versus host disease (GVHD). The drug was originally created to treat rheumatoid arthritis and has been approved for that use in the U.S. since 2005. GVHD is a dangerous health condition that can occur after a stem cell transplant, also known as a

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