Rare and Black
At Rare And Black, our mission is to empower and uplift Black patients living with rare disorders by raising awareness, promoting advocacy, driving legislative change, and improving access to crucial resources.
Ensoma launches clinical trial to prepare for CGD gene therapy
February 06, 2025
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Norovirus surge requires vigilance from PI community
January 30, 2025
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CSI Pharmacy
Providing complex therapies to patients in the home setting is a long-term commitment for our CSI Pharmacy staff.
Care transition and systems immunology experts join advisory committee
January 27, 2025
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Patient advocacy writer draws on experience with CVID
January 23, 2025
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Lunch & Learn: IPEX syndrome
January 23, 2025
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Living well with PI: Mental health and wellness tips
January 21, 2025
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Living well with PI: Mental health and wellness tips
January 17, 2025
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COVID convalescent plasma approved for those who are immunocompromised
January 16, 2025
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