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thumbnail for the ChronicXTwenties podcast which features three circles of Immune Deficiency Foundation colors, and the text "young adulthood, rare disease, and the joy you deserve".

ChronicXTwenties: Transitioning from pediatric to adult care with Riley and Nick

March 03, 2025

Rare Disease Diversity Coalition

Black Women’s Health Imperative launched the Rare Disease Diversity Coalition™ (RDDC™) to address the extraordinary challenges faced by underserved populations with rare diseases. The Coalition brings together rare disease experts, health and diversity advocates, and industry leaders to identify and advocate for evidence-based solutions to alleviate the disproportionate burden of rare diseases on historically marginalized populations.

National Hispanic Health Foundation

The National Hispanic Health Foundation (NHHF) is a 501(c)3 foundation headquartered in Washington, DC, working toward a more thriving and equitable healthcare ecosystem. Our approach focuses on increasing the representation of Hispanic healthcare professionals through leadership development, clinical research, scholarships, and health communications.

Association of Minority Health Professions Schools

AMHPS, established in 1976, is a 501(c)(3) nonprofit, educational, scientific, advocacy and charitable organization. It is comprised of twelve historically black medical, dental, pharmacy, and veterinary schools.

National Pharmaceutical Association

The National Pharmaceutical Association (NPhA) is a national, professional organization of pharmacists committed to serving the underserved and promoting minorities in pharmacy.

HealthHIV

HealthHIV is a national non-profit working with healthcare organizations, communities, and providers to advance effective HIV, HCV, STI and LGBTQ health care, harm reduction and health equity through education and training, technical assistance and capacity building, advocacy, communications, and health services research and evaluation.

Researcher studying DNA

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Immune Deficiency Foundation text logo

Bold Conversations: Health insurance

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Advocacy

Statement on federal policy changes: Pledge to protect the immunocompromised

February 21, 2025
Myles Temple holding his stem cells for BMT

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