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Advocacy

Statement on federal policy changes: Pledge to protect the immunocompromised

February 21, 2025
Myles Temple holding his stem cells for BMT

Powerlifter with SCID finds strength in family, friends, and faith

February 19, 2025
Cropped stock photo from handbook cover.

Manual para pacientes y familias sobre inmunodeficiencias primarias, sexta edición

February 19, 2025

National Medical Association

The National Medical Association (NMA) is the collective voice of African American physicians and the leading force for parity and justice in medicine and the elimination of disparities in health.

Hispanic Society for Rare Diseases / Sociedad Hispana de Enfermedades Raras

An association that promotes public awareness about rare diseases and provides information and resources in Spanish to families of Hispanic origin, as well as to organizations, scientists, and healthcare professionals focused on rare diseases.

Rare and Black

At Rare And Black, our mission is to empower and uplift Black patients living with rare disorders by raising awareness, promoting advocacy, driving legislative change, and improving access to crucial resources.

Researcher examines blood

Ensoma launches clinical trial to prepare for CGD gene therapy

February 06, 2025
Noro 3

Norovirus surge requires vigilance from PI community

January 30, 2025

CSI Pharmacy

Providing complex therapies to patients in the home setting is a long-term commitment for our CSI Pharmacy staff.

Drs. Aisha Ahmed and Elena Hsieh.

Care transition and systems immunology experts join advisory committee

January 27, 2025
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