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Insure Kids Now

This site, operated by the Centers for Medicare & Medicaid Services (CMS), provides information on state child and adolescent health insurance programs like Medicaid and the Children's Health Insurance Program (CHIP).

Probably Genetic

Probably Genetic is on a mission to make clinical-grade genetic testing affordable and accessible to the nearly 200 million undiagnosed rare disease patients worldwide. Our free testing program applies to all people in the U.S. (except New York) with symptoms suggestive of immunodeficiency disorders.

PAN Foundation

As a leading charitable foundation and healthcare advocacy organization, the Patient Access Network Foundation is dedicated to accelerating access to treatment for those who need it most and empowering patients on their healthcare journeys. Since 2004, our financial assistance programs have helped more than 1.3 million people to start or stay on life-changing treatment.

Dollar For

Most hospitals are required to have programs that discount or completely forgive bills for some patients. But they don’t make it easy. Dollar For helps individual patients navigate and access hospital financial assistance.

Patient Advocate Foundation

Patient Advocate Foundation (PAF) is a national 501 (c)(3) non-profit organization which provides case management services and financial aid to Americans with chronic, life threatening and debilitating illnesses.

2022 Annual Report

2022 Annual Report

August 10, 2023
Bryce Powerman visits his NIH doctors.

Bone marrow transplant curative for man with DOCK8 deficiency

August 09, 2023

Chapter 38: General Care

Download this chapter from the IDF Patient & Family Handbook for Primary Immunodeficiency Diseases, Sixth Edition.

Chapter 37: Clinical Trials

Download this chapter from the IDF Patient & Family Handbook for Primary Immunodeficiency Diseases, Sixth Edition.

Chapter 32: Autoimmunity in Primary Immunodeficiency

Download this chapter from the IDF Patient & Family Handbook for Primary Immunodeficiency Diseases, Sixth Edition.

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