| Immune Deficiency Foundation

Understanding primary immunodeficiency (PI)
Understanding PI
The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
Learn more about PI
Living with PI
Living with PI
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
Learn more about living with PI
Get involved
Get involved
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
Get involved today
Advancing research and clinical care
Advancing research and clinical care
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
View resource details

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Foundation Focus: June 2025 update with CEO Jorey Berry

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Two women completing paperwork

Financial assistance programs can help with medical bills

Woman in lab coat pipetting need tissue culture hood.

Foundation sends letter opposing research cuts

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Boy holding heart symbol

How Medicaid cuts could impact a family affected by SCID

Lunch & Learn: Understanding genetic variants in APDS

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Older woman receives vaccine in the upper arm.

Update: What RSV preventatives mean for those with PI

Genentech

Genentech is a leading biotechnology company dedicated to pursuing groundbreaking science to discover and develop medicines for people with serious and life-threatening diseases. Its transformational discoveries include the first targeted antibody for cancer and the first medicine for primary progressive multiple sclerosis.

gene.com 877-436-3683

Catilin BenVau stands with co-workers at a rocket testing site 2

Rocket scientist with CVID encourages others to pursue their passion

Jorey's monthly wrap-up: May 2025

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Little girl ill in bed

Consider increasing Ig therapy for breakthrough infections

Immune Deficiency Foundation
7550 Teague Road, Suite 220
Hanover, Maryland 21076

P: 410-321-6647