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ADMA Biologics

ADMA Biologics is relentlessly committed to creating products for immunodeficient patients at risk for infection.

Jeffrey Modell Foundation

The Jeffrey Modell Foundation (JMF) is a global nonprofit dedicated to early diagnosis, treatments, and ultimately, future cures for primary immunodeficiency through awareness, advocacy, and research.

Primary Immune Deficiency Treatment Consortium (PIDTC)

The Primary Immune Deficiency Treatment Consortium (PIDTC) consists of 47 centers in North America whose shared goal is to improve the outcome of patients with rare, life threatening, inherited disorders of the immune system. PIDTC is part of the Rare Diseases Clinical Research Network (RDCRN), which is funded by the National Institutes of Health (NIH) and led by the National Center for Advancing Translational Sciences (NCATS) through its Division of Rare Diseases Research Innovation (DRDRI).

International Patient Organization for Primary Immunodeficiencies (IPOPI)

International Patient Organization for Primary Immunodeficiencies (IPOPI) is an international organization whose members are national patient organizations for primary immune deficiencies. The website provides general information on primary immunodeficiency disease and resource contacts for patients and professionals worldwide.

Immune Deficiency Foundation

The Immune Deficiency Foundation, founded in 1980, is the national non-profit patient organization dedicated to improving the diagnosis and treatment of patients with primary immunodeficiency diseases through research, education and advocacy.

Grifols

Grifols is a global healthcare company that since 1909 has enhanced the health and well-being of people around the world. A leader in essential plasma-derived medicines and transfusion medicine, we develop, produce and provide innovative healthcare services and solutions in more than 110 countries.

CSL Behring

CSL Behring is a global biotherapeutics leader driven by our promise to save lives. Focused on serving patients’ needs by using the latest technologies, we discover, develop and deliver innovative therapies for people living with conditions in the immunology, hematology, cardiovascular and metabolic, respiratory, and transplant therapeutic areas.

IDF strategic plan

Review the three strategic objectives outlined by IDF to grow its community and improve PI care.

SCID research paper explores types of uncertainty faced by parents

March 31, 2023
Taylor Kane feeds her father John Kane, diagnosed with adrenoleukodystrophy (ALD), which affected his physical and cognitive functioning.

Remember The Girls empowers women affected by X-linked conditions

March 30, 2023
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