The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
If you missed the 2021 SCID Compass Summit held in April, you can still take advantage of the information shared during the event, as presentations are now live on the SCID Compass website.
Presented as a virtual event, the SCID Compass Summit highlighted the current state of SCID in the U.S. and the work being done to support those who are navigating this rare condition.
Twenty-one presenters addressed approximately 100 participants, including caregivers, industry representatives, laboratory personnel, clinicians, and other SCID advocacy members. The SCID Compass Summit agenda covered the following topics:
SCID Compass is a program funded by the Health Resources Services Administration and operates under the umbrella of the Immune Deficiency Foundation.
To view all of the SCID Compass Summit presentations, click here.
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The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life for every person affected by primary immunodeficiency.
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