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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Family together smiling

PI diagnosis can pose challenges in obtaining life insurance

October 24, 2024
thumbnail for the ChronicXTwenties podcast which features three circles of Immune Deficiency Foundation colors, and the text "young adulthood, rare disease, and the joy you deserve".

ChronicxTwenties: Heartbreakingly beautiful (Part 1)

October 23, 2024
Gloved hand uses tweezers to remove a section of a paper drawing of DNA.

Gene therapy makes headway in PI treatment

October 17, 2024
Headshot of Dr. Emily Harris.

Blaese awardee targets diagnosis and treatment of Evans syndrome

October 10, 2024
Woman getting a shot in her upper arm from healthcare provider.

Ensuring clinical trial diversity for emerging rare disease therapies

October 08, 2024
Bold conversations thumbnail

Bold Conversations: CGD and medical immigration with Susanna Raj

October 08, 2024
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2025 IDF research grant application

October 08, 2024
image of nurse checking a patient's heart rate with text "Decoding PI: Protecting yourself against covid, flu, and RSV.

Decoding PI: Protecting yourself against covid, flu, and RSV

October 07, 2024
Girl walking with a suitcase

Traveling with PI checklist

October 04, 2024
Person performing lab work

Laboratory tests, patient story critical in diagnosing PI

October 03, 2024
Doctor with X-ray

Address lung disease early with primary immunodeficiency

September 26, 2024
fall advocate 2024

Fall 2024 IDF ADVOCATE newsletter

September 25, 2024
IDF 2024 research grantees Drs. Emily Harris, David Nguyen, Alexandra Martinson, and Laruen Meyer.

Foundation announces research seed grants

September 20, 2024
Twins Elliot and Walker Ridge

Mother creates support system for daughter with APDS

September 20, 2024
taking an online quiz

Immune system self-assessment

September 13, 2024
Woman pipetting in a research laboratory.

Program boosting rare disease treatments set to expire

September 11, 2024
PI and hepatology

PI can cause difficult-to-diagnose liver disease

September 09, 2024
thumbnail for integrative pain management video featuring two individuals doing yoga on a beach

Integrative medicine and pain management: Living well with PI

September 06, 2024

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.