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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

A la secundaria y universidad: una sesión para padres de niños de 12 a 20 años diagnosticados con PI

August 09, 2021

Los años de primaria: una sesión para padres de niños con PI en los grados K-6

August 09, 2021

The elementary years: A session for parents of children with PI in grades K-6

August 09, 2021

Rare of the Rare quick clip: Primary immune regulatory disorders (PIRD)

August 09, 2021

Managing lung issues: Focus on GLILD, bronchiectasis

August 09, 2021

Primary ciliary dyskinesia (PCD) & primary immunodeficiency: Sorting zebras

August 09, 2021

Diagnosis-specific education session: X-linked agammaglobulinemia

August 09, 2021

Diagnosis and management of autoimmune cytopenias in primary immunodeficiency

August 09, 2021

Diagnosis-specific education session: IgG subclass deficiency, SAD, and hypogammaglobulinemia

August 09, 2021

Diagnosis-specific education session: Selective immunoglobulin deficiency: IgA & IgM deficiencies

August 09, 2021

Diagnosis-specific education session: APS Type 1 & APECED

August 09, 2021

Diagnosis-specific education session: Chronic granulomatous disease

August 09, 2021

Diagnosis-specific education session: Combined immune deficiency

August 09, 2021
Sancho family

Book chronicles struggle with CGD diagnosis

July 26, 2021
IDF Podcast Graphic

The public face of PI

July 23, 2021
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Model Coverage Policy for Ig Replacement Therapy

July 22, 2021

Nutrition key for brothers with XLA

July 22, 2021
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Health Access

July 16, 2021

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.