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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Expanding awareness with creativity

September 12, 2019
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New resource for those living with a rare disease

August 15, 2019
IDF video

Common variable immune deficiency (CVID)

August 05, 2019
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Medical kit for clinicians

July 29, 2019

Update on SCID Compass

July 26, 2019
IDF video

What’s the connection: Primary immune regulatory disorders (PIRDS), autoimmunity & PI

July 26, 2019
IDF video

Selective immunoglobulin deficiency: IgA & IgM deficiencies

July 26, 2019
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Overview of the NIH APECED natural history study

July 26, 2019
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Natural killer (NK) cell deficiency

July 26, 2019
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Managing autoimmune issues with SCID

July 26, 2019
IDF video

Managing adrenal insufficiency and hypoparathyroidism in APECED/APS type 1

July 26, 2019
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Management of X-linked thrombocytopenia

July 26, 2019
Respiratory infection graphic

Lung inflammation/Granuloma problems with CGD

July 26, 2019
IDF video

Gastrointestinal inflammation/Granuloma problems with CGD

July 26, 2019
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Female hypogonadism in APECED/APS type 1

July 26, 2019
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Beyond the sneeze: Allergies & primary immunodeficiency

July 26, 2019
IDF video

Are carriers really unaffected? Observations in XHIGM carrier females

July 26, 2019
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Newborn Screening Saves Lives Reauthorization Act passes House and moves to Senate

July 25, 2019

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.