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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

La importancia de participar en las investigaciones: La experiencia de una Familia (The importance of participating in research: One family’s experience)

December 20, 2018
The Adams and Hunkapiller family.

Brothers with CGD reach 11-year post-transplant milestone

December 12, 2018
Person holding a baby's feet.

All 50 states now screening newborns for severe combined immunodeficiency (SCID)

December 11, 2018
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The history of SCID newborn screening

December 10, 2018
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Sample letter from provider appealing denial of authorization of immunoglobulin therapy

October 17, 2018
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A tale of two lives

October 12, 2018
Kim DiGangi at an IDF Walk for PI event.

IDF volunteer Kim DiGangi: A little help from new friends can go a long way

September 20, 2018
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Prescription costs and co-pay accumulators

September 18, 2018
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IDF Guide to Ig Therapy

July 11, 2018
Carly Wiehe with her son Brandon on a hike.

One mom's positive outlook on CGD

May 14, 2018
IDF video

Course for nurses: SCIG therapy

May 10, 2018
IDF video

IVIG therapy

May 10, 2018
IDF video

Overview of Ig therapy and disease states it which it is utilized

May 10, 2018
IDF video

Primary immunodeficiencies: Combined T cell and/or B cell immune defects

May 10, 2018
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Guide to Hematopoietic Stem Cell Transplantation

May 09, 2018
Mits Morales, center, with fellow IDF volunteers on Capitol Hill for IDF Advocacy Day, March 22, 2018.

Young man with CGD helps others, advocates for the community

April 19, 2018
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Primary immune deficiency diseases in America: The fifth national survey of patients (2017)

March 19, 2018
Angela Pauling and her son Alistair.

Mom takes a proactive, balanced approach to caring for her 10-year-old son with CGD

February 06, 2018

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.