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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Family coping with chronic granulomatous disease relies on tight bonds

August 31, 2022

CGDAA empowers, connects CGD community

July 28, 2022

Study finds CGD carriers exhibit symptoms of disorder

June 24, 2022
laptop

Lunch and Learn: CGD carrier study

May 31, 2022

CGD symptoms vary with superoxide production

May 02, 2022
Mato family

Advocacy, provider support critical in helping family cope with CGD

March 25, 2022

PBS program highlights CGD diagnosis and treatment

March 08, 2022
Casey Warford

'Take the reins of your own healthcare'

February 28, 2022

Drug prevents major bone marrow transplant complication

January 07, 2022

Experts discuss bone marrow transplant for chronic granulomatous disease

December 17, 2021
IDF Podcast Graphic

Living with CGD: A discussion about bone marrow transplant

December 16, 2021
Brandon in construction outfit

Bone marrow transplant boosts health of boy with CGD

November 16, 2021
Joan, Shane, and Kate

Make mental health a priority

October 22, 2021
Family picture

Faith guides mom with CGD

September 23, 2021

Diagnosis-specific education session: Chronic granulomatous disease

August 09, 2021
Sancho family

Book chronicles struggle with CGD diagnosis

July 26, 2021

'Be your own advocate'

June 28, 2021

Living life to the fullest

April 30, 2021

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.