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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Kaliq and Alia Naffouj at the Great Wall of China

Taking on an imperfect world and making it the best he can

January 17, 2019

Chronic granulomatous disease (CGD) - IDF Reel Stories, Lloyd Blackwell

January 11, 2019
The Adams and Hunkapiller family.

Brothers with CGD reach 11-year post-transplant milestone

December 12, 2018
Person typing on a computer

A tale of two lives

October 12, 2018
Carly Wiehe with her son Brandon on a hike.

One mom's positive outlook on CGD

May 14, 2018
Mits Morales, center, with fellow IDF volunteers on Capitol Hill for IDF Advocacy Day, March 22, 2018.

Young man with CGD helps others, advocates for the community

April 19, 2018
Angela Pauling and her son Alistair.

Mom takes a proactive, balanced approach to caring for her 10-year-old son with CGD

February 06, 2018

Chronic granulomatous disease (CGD) - IDF Reel Stories, Megan Trahan

September 08, 2017

Chronic granulomatous disease (CGD) - IDF Reel Stories, Kathryn & Cameron Paul

September 08, 2017
Person typing on a computer

My relationship with an amazing woman

June 12, 2017
Felicia Morton and her son Sebastian on the train.

Sometimes you sail through…

May 12, 2017
The Esqueda family.

A family affair: The Esqueda family

February 13, 2017
Clayton Cowan and his brother celebrate.

Catching up with Clayton Cowan

September 30, 2016
Ben crosses the Walk for PI finish line.

IDF Walk for PI’s impact on 3-year-old Ben and his teammates

May 26, 2016
Marty and Clayton Cowan.

Mom aimed to find joy in every moment during transplant

January 27, 2016
Thaddaeus Brown holds a baseball.

Each day is a gift for this mother and son

November 06, 2015
Person typing on a computer

Starting school with confidence, as a patient or a parent

September 30, 2015

Chronic granulomatous disease (CGD) - IDF Reel Stories, The Fernandez family

September 07, 2015

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.