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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

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Home IVIG becomes a permanent Medicare benefit after a decade

December 23, 2022

From plasma to copay accumulators, IDF achieves advocacy wins

December 14, 2022
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Report shows health benefits of Medicare IVIG Demonstration

November 28, 2022
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Paying for immunoglobulin replacement therapy

November 14, 2022
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Hyper IgE/Job syndrome Lunch & Learn

November 08, 2022
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Plasma supply update: Remaining proactive on a critical issue

October 05, 2022

PI Conference explores links between fatigue and PI

October 04, 2022
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B cells slow to replenish after BMT for SCID

September 30, 2022
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U.S. Ban on Mexican plasma donors temporarily lifted

September 22, 2022
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B-cell reconstitution and IgG infusion for SCID

September 06, 2022
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Ig replacement therapy is as individual as you

July 08, 2022
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Continuing education courses offered for physicians

July 01, 2022
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Immunoglobulin replacement therapy: As individual as you with Dr. M. Elizabeth M. Younger

July 01, 2022
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Congenital athymia diagnosis begins at newborn screening

June 30, 2022
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Immunoglobulin replacement therapy: As individual as you

June 09, 2022
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Convalescent plasma and COVID-19 with Dr. Arturo Casadevall

May 26, 2022
Rare of the rare - An IDF summit

Precision medicine targeted therapy for primary immunodeficiency: Where are we now?

November 05, 2021
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Model Coverage Policy for Ig Replacement Therapy

July 22, 2021

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.