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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

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Bold Conversations part 3: The business case for health access

August 23, 2023
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Project ECHO clinician series: Addressing social determinants of health

July 10, 2023
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Bold conversations part 2: The roots of medical mistrust among communities of color

April 04, 2023
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Bold conversations part 1: What is health access?

February 06, 2023

Renowned immunologists join IDF’s Medical Advisory Committee

January 31, 2023
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IDF serves thousands through education, advocacy, and research efforts

January 24, 2023

Be your healthcare general manager in journey with PI

August 22, 2022

SCID Family Day provides outreach to Amish community

July 14, 2022
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Health access awards tackle primary immunodeficiency diagnosis and awareness issues

May 26, 2022

What to ask your healthcare provider: An IDF Forum, January 20, 2022

January 20, 2022

Dr. Rochester named IDF's medical advisor on health access

January 18, 2022
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Opportunities for young people of color in science

December 29, 2021

Five questions to ask your doctor

November 30, 2021

Report explores telehealth for SCID

November 02, 2021
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Health Access

July 16, 2021

Telehealth: Opportunities for Use with American Indian and Alaska Native SCID Families

June 10, 2021

Key opinion leaders discuss SCID

November 30, 2020

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.