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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

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Study shows CVID patients at higher risk for neurologic issues

September 15, 2023
A woman and a health care professional have a discussion.

Clinical trial explores biologic treatment for CVID lung condition

August 31, 2023
Project ECHO. Health worker with patient

Project ECHO clinician series: All about teamwork

June 26, 2023
Project ECHO. Health worker with patient

Project ECHO clinician series: Comorbidities and PI

June 05, 2023
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Primary immunodeficiency & neurological issues

April 18, 2023

Gastrointestinal disorders common in primary immunodeficiency

December 20, 2022

SCID bone marrow transplant can result in chronic long-term health effects

December 15, 2022
IDF Podcast Graphic

Community Q&A: Gastrointestinal issues and primary immunodeficiency

December 15, 2022

NIH clinical trial explores fecal transplant for CGD colitis

December 08, 2022
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Gastrointestinal issues and primary immunodeficiency

December 06, 2022
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Organ function and long-term outcomes following hemopoietic stem cell transplants for SCID

November 30, 2022
IDF Podcast Graphic

The connection between mental and physical health

November 30, 2022
Woman blowing her nose

Managing chronic sinusitis and PI

November 29, 2022
Person typing on a computer

COPD a risk in certain primary immunodeficiencies

November 21, 2022
Pills

Drug allergies and primary immunodeficiency

November 16, 2022
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Managing autoimmune issues and primary immunodeficiency

August 26, 2022
Doctor with older patient

Managing primary immunodeficiency during the senior years

August 17, 2022

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.