Skip to main content
IDF logo

Browse resources

Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

beach scene

New documentary film released

August 20, 2024
illustration of Ironmouse

From bedridden to beloved: Ironmouse's journey as a plasma advocate

August 12, 2024
Rebecca Martin and her sister lounge on the beach.

Retiree's journey into a rewarding plasma donation routine

July 10, 2024
'Compromised' documentary movie graphic

‘Compromised: Life Without Immunity' profiles families affected by PI

June 27, 2024
Laura Zamora and her daughter at the beach thumbnail

Woman with hyper IgE syndrome focuses on the positive

June 14, 2024
Ezra toddler 2

Teen hosts podcast featuring peers with hyper IgM syndrome

May 31, 2024
bird

Volunteer established PI education groups 33 years ago

May 08, 2024
Nicholas Licota portrait.

Twitch streamers CDawg and Ironmouse inspire new plasma donor

April 26, 2024
Elias cheering

Family advocates for son with NEMO

April 25, 2024
woman standing in yellow flowers

Physical therapist understands PI as patient and provider

March 21, 2024
Scientist wearing glasses uses dropper to perform work in lab

PI diagnosis sparks PhD candidate’s neuroimmunology research interest

February 09, 2024
Black and white photograph taken of Charles Drew.

Pioneer of Plasma in honor of Black History Month

February 06, 2024
Woman with zebra stripes on face 2

Adulting with PI support group leader specializes in trauma

January 31, 2024
A mom, dad, and children hug and smile

Parents push Medicaid to cover four-year-old’s thymus tissue implant

January 23, 2024
undiagnosed podcast graphic

Undiagnosed (feat. The Autism Dad): Father and Son

December 05, 2023
Maria, Eva, Tony, and Antonio Banda.

Brother with CGD gets lifesaving stem cell donation from sibling

October 11, 2023
Carol Ann Demaret holds her son David Vetter in July 1977.

Carol Ann Demaret advocated for SCID—and IDF

September 20, 2023
Person typing on a computer

Volunteer spotlight: Rafhaela (Ella) Vedia

September 13, 2023

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

lady looking at computer

Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.