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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

SCID Compass Lunch and Learn: PIDTC & IDF neurodevelopmental study

July 06, 2022
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Premature infant surveillance & quality improvement study

July 06, 2022
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Family planning considerations for SCID

July 06, 2022

Study finds CGD carriers exhibit symptoms of disorder

June 24, 2022
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Lunch and Learn: CGD carrier study

May 31, 2022
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Health access awards tackle primary immunodeficiency diagnosis and awareness issues

May 26, 2022
IDF Forum explores origins of long COVID

IDF Forum explores symptoms, causes of long COVID

May 25, 2022
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Gut microbiome and immune dysregulation top PI research grant topics

May 17, 2022
COVID

Long COVID in the PI community

April 27, 2022

Survey explores provider SCID knowledge

April 25, 2022
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Gene therapy for Wiskott-Aldrich syndrome shows long-term promise

April 14, 2022
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IDF study on XLA points to factors influencing quality of life

March 15, 2022
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SCID Angels awards research grants

January 29, 2022
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International experts study SCID variants in the Irish Family

December 20, 2021

Report explores telehealth for SCID

November 02, 2021
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Clinical research trials and you

October 15, 2021

Diagnosis-specific education session: APS Type 1 & APECED

August 09, 2021
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Expectations and experiences: Parent and patient perspectives

July 08, 2021

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.