Skip to main content
IDF logo

Browse resources

Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

IDF Podcast Graphic

The connection between mental and physical health

November 30, 2022
Woman blowing her nose

Managing chronic sinusitis and PI

November 29, 2022
Person typing on a computer

COPD a risk in certain primary immunodeficiencies

November 21, 2022
Pills

Drug allergies and primary immunodeficiency

November 16, 2022
laptop

Managing autoimmune issues and primary immunodeficiency

August 26, 2022
Doctor with older patient

Managing primary immunodeficiency during the senior years

August 17, 2022

Primary ciliary dyskinesia (PCD) & primary immunodeficiency: Sorting zebras

August 09, 2021

Managing lung issues: Focus on GLILD, bronchiectasis

August 09, 2021

Diagnosis and management of autoimmune cytopenias in primary immunodeficiency

August 09, 2021
doctor writing

Managing GI issues & PI

November 20, 2020
Blood

Blood disorders associated with PI: An IDF Forum, November 17, 2020

November 17, 2020

Managing sinus issues

November 13, 2020
laptop

Non-infectious complications of primary immune deficiency: An IDF Forum, November 12, 2020

November 12, 2020
Woman blowing her nose

Managing sinus issues: An IDF Forum, October 8, 2020

October 08, 2020

Managing GI issues

October 01, 2020
laptop

Managing autoimmune issues with SCID

July 26, 2019
IDF video

Managing adrenal insufficiency and hypoparathyroidism in APECED/APS type 1

July 26, 2019
laptop

Female hypogonadism in APECED/APS type 1

July 26, 2019

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

lady looking at computer

Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.