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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

maria diaz unexplainable miracles

'Blessed with unexplainable miracles'

February 18, 2021
Person typing on a computer

Documentary focuses on SCID

December 15, 2020

Unspecified primary immunodeficiency - IDF Reel Stories, Victoria Medl

December 04, 2020
Alexa at four-years-old

Journey to Alexa's life day

September 03, 2020

Volunteer treasures IDF friendships

August 05, 2020

Long-time IDF volunteer finds love, support within her zebra family

July 23, 2020
Ken and Lisa on their farm

Donor spotlight: Ken and Lisa

June 29, 2020

The Duggan family shares their journey with SCID

June 01, 2020

From struggle to success: A family's story with SCID

April 20, 2020

From struggle to success: A family's story of severe combined immune deficiency (SCID)

April 20, 2020

SCID Compass reps share insight with staff at Children's Hospital of Orange County

April 08, 2020

CGD has shaped me for the better

April 02, 2020
Casey Warford

Casey Warford: Attitude is everything

February 28, 2020
Dad, mom, and daughter in the woods.

Understanding SCID: One family's journey

January 01, 2020
mom, dad, and baby photographed outside

The SCID journey: Navigating choices and post-treatment

January 01, 2020
Mother and son together outside.

The SCID journey: Returning home

January 01, 2020
Mom, Dad, and triplet children

The SCID journey: Planning for the future

January 01, 2020
father, child, and mother standing under a tree

The SCID journey: Navigating the hospital stay

January 01, 2020

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.