Share Your Story

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Because primary immunodeficiency (PI) is rare, you may not often hear stories like your own. We encourage you to share your story and experiences to inspire others living with PI. There are two ways you can do this:

IDF Blog
The IDF Blog documents news and events of the PI community as well as stories of hope and accomplishments from our patients and family members–people just like you. We encourage you to check out the blog posts and comment on them. If you want a post about how you live with PI, contact us.

IDF Reel Stories
IDF Reel Stories is a patient-generated video community designed to encourage and empower fellow patients and their loved ones. In addition to general stories of hope and inspiration, you can select from the robust playlist of video testimonials that touch us on some level – whether as individuals, families or as members of the IDF community.

Find a video that relates to your own life experience with primary immunodeficiency disease. Or, better yet, share your own video story with our community! If you are interested in submitting your own video, contact us.