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November 16 2018
Advocacy, SCID

Indiana Now Screening Newborns for SCID

POSTED BY: rdelaney

The Immune Deficiency Foundation (IDF) is pleased to report that Indiana is now screening all newborns for Severe Combined Immunodeficiency (SCID). Over the past year and a half, IDF has met with representatives from the Governor’s office, the Indiana State Department of Health and the state screening lab to advocate for universal SCID screening

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October 31 2018
PI

Raising Awareness for Plasma Donation

POSTED BY: rdelaney

International Plasma Awareness Month Throughout the month of October, IDF highlighted the importance of plasma donation and why plasma donors are truly lifesavers to many people living with PI. We want to thank those who donate plasma so many in our community can stay healthy. The majority of people diagnosed with PI have defects in their immune

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October 31 2018
PI

“Coping with the Emotional Dimensions of PI” Now Available

POSTED BY: rdelaney

Catch Up on Episode Two of the Primary Immunodeficiency Q&A Podcast Have you listened to the second episode of IDF’s Primary Immunodeficiency Q&A podcast? If not, you can listen to the latest episode here. In this episode, we talk with special guest and psychotherapist Jodi Taub, LCSW, LLC, about the emotional and psychological impact of

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October 31 2018
Walk for PI

Will You Be Joining the Fun at IDF Walk for Primary Immunodeficiency Disease?

POSTED BY: rdelaney

Come Walk With Us! Hey, folks! It’s IDF Walk for PI season! That’s right—it’s the time of year when IDF packs up for the weekend and travels to cities across the country to promote primary immunodeficiency disease (PI) awareness and connect with zebras near and far. Are you joining in on the fun? Each walk has snacks, music, (enjoyable)

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October 31 2018
PI

Since You Asked: Question & Answer (October 2018)

POSTED BY: rdelaney

This article originally appeared in the IDF monthly e-newsletter, Primary Immune Tribune. Click here to subscribe. Question 1: I have low IgG and IgM. I suffered with the flu last year despite getting vaccinated, and I do not want a repeat. Are there any changes or updates about this year’s influenza vaccine that I need to know? How can I protect

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