Urgent: Biologic Withdrawal Information for Gamunex (Three Lots)
Grifols Therapeutics LLC has initiated a voluntary withdrawal of Gamunex™ Images courtesy of the Patient Notification System.
Read MoreHave You Herd?
Have you listened to IDF’s monthly podcast? Check out our new name: Have You Herd? An IDF Podcast. “Have You Herd?” was created to honor our awesome zebra herd and explore topics that affect the PI community. Join IDF President & CEO John G. Boyle as he hosts specialists and panels to discuss PI-related, diagnosis-specific, and
Read MoreDonor Spotlight: Marilyn Rifkin & Debbie Junk
Marilyn Rifkin, diagnosed with Common Variable Immune Deficiency (CVID), attended her first IDF educational event in 2019. During the event, she was inspired and thought IDF offers so much; it’s so important that patients and families know about this organization. Without a second thought, she decided to volunteer as a walk-chair to bring a
Read MoreBrother donates cells to sibling with rare PI
Bree Andreazza remembers exactly how she and her husband Troy felt after learning their 4-month-old son Levi had Wiskott-Aldrich syndrome (WAS) and required intensive treatment. “I went numb the moment they said we had no other option but to proceed with a bone marrow transplant. My husband and I were very upset,” said Bree. “We were given a
Read MoreVideo Focuses on Navigating Hospital Stay
What are some questions you should ask when considering a bone marrow transplant (BMT) for your baby with severe combined immunodeficiency (SCID)? A new video posted to the SCID Compass website provides parents with a brief overview of topics to explore when researching transplant centers. Created by SCID Compass partner Genetic Alliance
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