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April 17 2018
Community, Education, Events, PI

IDF Education Meetings: Bringing Together the IDF Community to Build Connections, Foster Education and Have Fun

POSTED BY: rdelaney

There are many opportunities for the IDF community to come together and learn about living with primary immunodeficiency diseases (PI), one of those being IDF Education Meetings. These educational events, held in various cities around the country throughout the year, are specifically designed for individuals with PI and their families to provide

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April 16 2018
Awareness, Community, Volunteer

IDF Started with You

POSTED BY: kmcmahon

The Immune Deficiency Foundation (IDF) started with volunteers. In 1980 Marcia Boyle co-founded IDF, the national nonprofit patient organization dedicated to people with primary immunodeficiency diseases (PI) after her son was diagnosed with a PI. Following his diagnosis, Marcia soon realized and was deeply concerned to find there were no

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April 09 2018
Awareness, Community

Common Misconceptions & Current Treatment

POSTED BY: kmcmahon

Common misconceptions of primary immunodeficiency diseases (PI) are that individuals with these rare, chronic disorders are “allergic to the world” and they “live in a bubble.” With early diagnosis and appropriate treatment, most living with a PI can lead healthy and productive lives—with no need to shield themselves from the world. Take the 2017

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April 03 2018

Volunteer Spotlight - Kelly Spinelli-Deaves

POSTED BY: kmcmahon

One thing that frustrates many of those living with a primary immunodeficiency disease (PI) are the years of struggling it takes to finally reach a diagnosis. After 15 doctors and 5 years, Kelly Spinelli-Deaves was finally able to put a name to her suffering: Common Variable Immune Deficiency (CVID), a type of PI. Pictured: Kelly Spinelli-

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April 02 2018
Awareness, Community, Family

Why does the PI community identify with zebras?

POSTED BY: kmcmahon

You may be wondering why your friend or family member living with primary immunodeficiency disease (PI) calls themselves a zebra, wears zebra print clothing and says things like, “zebra strong!” This is because the PI community often strongly identifies with zebras based on an old saying that doctors learn in medical school. Physicians are

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