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May 24 2018
Awareness, Community, Events, Family, Walk for PI

One Mom's Reasons to Participate in IDF Walk for PI

POSTED BY: kmcmahon

“I walk because my kids deserve a cure; they are worth it.” One Mom’s Reasons to Participate in IDF Walk for PI “I walk because my kids deserve a cure; they are worth it,” says Katie Knobl, who has participated in IDF Walk for PI in Philadelphia for the past four years and is a mom of two young boys with primary immunodeficiency diseases (PI). “

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May 09 2018
Education, Patients, PI

“How Can I Have an Allergy If I Have a Weak Immune System?”

POSTED BY: rdelaney

Understanding Allergies and Primary Immunodeficiency By Joshua D. Milner, MD National Institute of Allergy and Infectious Diseases, National Institutes of Health Having allergies when you also have a primary immunodeficiency can make anyone’s head spin (or sneeze). Allergies are tricky enough as it is, with different definitions of what an

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April 30 2018
Awareness, Community, Volunteer

IDF Volunteer Scott Bywater: Giving Hope to Others on the Same Path

POSTED BY: kmcmahon

Receiving a primary immunodeficiency (PI) diagnosis sparks a mix of emotions—some may feel relieved to finally get a diagnosis after many years of illness and some may experience uncertainty about what the future will hold and how daily life will change. IDF volunteer and community member Scott Bywater can recall the whirlwind of emotions and

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April 30 2018
Awareness, Community

What does raising PI awareness mean to you? How can you continue raising awareness throughout the year?

POSTED BY: kmcmahon

Trying to explain that you have a primary immunodeficiency disease (PI) can be complicated, especially when most people haven’t ever heard of your disease before. PI awareness increases the understanding and recognition of these chronic, rare diseases that can make a huge difference in the lives of those who are living with PI. While people may

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April 30 2018

The New and Improved IDF Friends is Here!

POSTED BY: rdelaney

We’re proud to announce the launch of the newly updated IDF Friends website! Since 2009, IDF Friends has provided individuals with PI and their families with a supportive, private online community where members can post discussion topics, ask questions, share stories, get support, connect with others in similar situations and more. IDF Friends

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