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July 05 2018
Awareness, Community, Events, Family, Fundraising, Walk for PI

Why should you walk for PI?

POSTED BY: kmcmahon

It all started in 2013. Three walks in three cities across the country: Philadelphia, Los Angeles and Chicago. Members of the PI community wanted a way to create awareness about primary immunodeficiency diseases (PI), and IDF Walk for PI soon became their answer. 2013 IDF Walk for PI - Los Angeles Each year the walk grew and expanded—soon

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June 29 2018
Awareness

Since You Asked: Question & Answer (June 2018)

POSTED BY: rdelaney

These Questions & Answers originally appeared in the IDF monthly e-newsletter, Primary Immune Tribune. Click here to subscribe. Question 1: Starting Ig TherapyQuestion 2: Finding Health Insurance that Covers Ig Therapy Question: I have been tested a few times and my IgG levels are under 20, yes double digits! I have had a lung infection for

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June 27 2018
Education, Patients, PI

Do You Know Your Immunoglobulin Product?

POSTED BY: rdelaney

Whether you go to an infusion center or receive your immunoglobulin (Ig) at home, it is imperative that you know what product is being infused into your body. Are you receiving the product that was prescribed for you by your provider? IDF is periodically notified by patients who are unable to get their prescribed product because their product was

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June 26 2018
Awareness, Community, Events, Family, PI, Walk for PI

“I have a primary immunodeficiency disease. It’s long and hard to pronounce.”

POSTED BY: kmcmahon

Calleigh of Ridley Park, PA is a bright 8-year-old girl with a positive attitude who loves dancing and cats. She is also living with hypogammaglobulinemia, a type of primary immunodeficiency disease (PI). As she grew, so did her number of illnesses—despite the previous hope that her disease diagnosed at infancy was transient (she would grow out of

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June 18 2018
Awareness, Community, Plasma Partners Program, Volunteer

Raising PI Awareness at a Newly Opened CSL Plasma Center

POSTED BY: kmcmahon

Jessica Goddard is a member of the IDF community and is living with Common Variable Immune Deficiency (CVID). As a way to raise awareness of primary immunodeficiency diseases among plasma donors and centers, Jessica volunteers as an IDF Plasma Awareness Coordinator. Recently, a new CSL Plasma donation center opened in Columbia, South Carolina.

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