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May 31, 2023
Research

PI research grants span diagnosis, T cell biology, and new treatments

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IDF’s 2023 grantees are developing treatments like gene editing and fecal microbiome transplant, advancing genetic diagnoses, and developing techniques to better understand specific primary immunodeficiencies.

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May 31, 2023
Research

Blaese awardee is developing a gene editing strategy to treat XLA

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Dr. Donald Kohn, winner of the 2023 Michael Blaese Research Grant Award, will use his grant funds to gather crucial pre-clinical data for a gene editing strategy to treat X-linked agammaglobulinemia (XLA). If successful, his strategy could begin clinical trials in 2-4 years.

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May 30, 2023
Awareness, Patients, Teen Escape

Young adult with CVID strives to improve others’ lives

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Bryan Jirsa, diagnosed with common variable immune deficiency (CVID), played varsity football at Fallston High School in Maryland.

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May 18, 2023
Living with CGD

Bone marrow transplant restores health of boy with CGD

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After battling a life-threatening infection, Harry McLachlan, a toddler with chronic granulomatous disease (CGD), is healthy thanks to a bone marrow transplant (BMT).

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May 09, 2023
Research

Primary immunodeficiency patient registry moves into a new era

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After 30 years at IDF, the United States Immunodeficiency Network (USIDNET) is moving to the Children’s Hospital of Philadelphia (CHOP) and into the genomics era.

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