You are here

October 13, 2020
Education

Drug Allergies and PI

POSTED BY:

If you’re unsure as to whether or not you’re allergic to penicillin, visit an allergist to find out. Why is this particularly important for those with PI? Because being allergic to penicillin reduces the types of antibiotics that can be administered to treat your infections. Doctors may have to resort to using stronger antibiotics, leading to

Read More
October 12, 2020
Medicare

An Update on the Medicare IVIG Demonstration and the Legislation Attempting to Extend It

POSTED BY: AFreestone

As we have shared, the Medicare IVIG Access Demonstration (demo) allowing Medicare beneficiaries with primary immunodeficiency (PI) to receive intravenous immunoglobulin replacement therapy (IVIG) in the home will end on Dec. 31, 2020 unless it is renewed by act of Congress. In 2017, IDF was successful in ensuring congressional renewal of the

Read More
October 09, 2020
SCID Compass

Video Explains SCID Diagnosis

POSTED BY:

Those parents feeling overwhelmed after learning their baby has severe combined immunodeficiency (SCID), a life-threatening PI in which a baby is born without a functioning immune system, may find some comfort and clarity by watching a simple but informative video describing the process of SCID diagnosis. Posted on the SCID Compass website, the

Read More
October 07, 2020
Education

Power of Plasma

POSTED BY:

When the pandemic hit, the Plasma Protein Therapeutics Association (PPTA) met with the U.S. Department of Homeland Security and European officials to ensure that plasma donation centers were deemed essential businesses. Those efforts kept the doors open at the more than 860 centers nationwide, but that didn’t mean that donors walked through them

Read More
October 02, 2020

Connection and Knowledge at Rare of the Rare

POSTED BY:

IDF Rare of the Rare Summit Offers Comfort and Answers to the CGD Community   Dealing with a rare diagnosis such as Chronic Granulomatous Disease (CGD) is not for the faint of heart. Families living with CGD encounter unique challenges every day that require dedication and resilience to overcome those trials. IDF understands that these

Read More