You are here

March 21, 2019

Carefully Consider Participating in Research

POSTED BY: AFreestone

The Immune Deficiency Foundation (IDF) offers many ways to get involved in research, and we routinely work with industry and marketing groups to aid in the recruitment of research studies. IDF takes many precautions, however, to make sure contact comes from and through IDF, and we would never give or sell your personal information to third parties

Read More
March 19, 2019
Walk for PI

Save the Date for IDF Walk for PI 2019!

POSTED BY: mtewey

Grab your calendars and get excited, IDF community! We're officially announcing the locations of IDF Walk for Primary Immunodeficiency 2019. We've nearly doubled our walks, expanding the impact that we can make on people living with primary immunodeficiency diseases - all with your help, of course! National Walks (A-Z) Boston, MA: Sunday,

Read More
March 06, 2019

PI Community Represented at Senate Committee Hearing on Preventable Diseases and Vaccines

POSTED BY: rdelaney

On Tuesday, March 5, 2019, the Senate Committee on Health, Education, Labor and Pensions held a hearing to discuss the recent outbreak of preventable diseases and the need for vaccinations in the U.S. Community immunity, also known as herd immunity, is a pivotal issue for people with primary immunodeficiency diseases (PI), and it was important

Read More
February 28, 2019

Since You Asked: Question & Answer (February 2019)

POSTED BY: rdelaney

This article originally appeared in the IDF monthly e-newsletter, Primary Immune Tribune. Click here to subscribe. Question 1: I have not traveled outside of the U.S. since I was diagnosed with Common Variable Immune Deficiency (CVID). I am planning a trip abroad and need to know what precautions I should take prior to traveling? Should I get the

Read More
February 22, 2019

Urgent: Biologic Withdrawal Information for Gamunex C 10%

POSTED BY: rdelaney

Grifols Therapeutics LLC has initiated a voluntary withdrawal of Gamunex C 10%. Click here to read the notification from the Patient Notification System. 

Read More