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February 22 2018
Community, SCID

Remembering David Vetter’s Gallant Life

POSTED BY: rdelaney

The incredible story of David Vetter’s life was recently featured in the BBC’s Witness program, including a touching interview with his mother and IDF Board of Trustees member Carol Ann Demaret.  In 1971, David, affectionately known as the boy in the bubble, was born with Severe Combined Immune Deficiency (SCID), one of the most severe types of

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February 09 2018
Advocacy

Medicare Reimbursement Fix for SCIG Passes Congress

POSTED BY: rdelaney

At approximately 5 a.m. ET on Friday, February 9, the U.S. House of Representatives passed the nation’s spending Continuing Resolution. The President is expected to sign the two-year spending deal. In that spending deal is language that will fix the Medicare reimbursement problem for the administration of subcutaneous immunoglobulin replacement

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February 08 2018
Awareness, Community, Plasma Partners Program, Volunteer

Spread PI Awareness at Your Local Plasma Center

POSTED BY: kmcmahon

Individuals living with a primary immunodeficiency disease (PI) are missing the integral parts of their immune system that helps to fight infections. Some types of PI make people antibody-deficient and unable to make antibodies to fight these infections, so they rely on life-saving immunoglobulin (Ig) replacement therapy for their entire lives.

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February 07 2018
SCID

SCID Newborn Screening in Indiana on the Horizon

POSTED BY: AFreestone

UPDATE - SCID in Indiana 2/14/18 HB 1017, which adds which spinal muscular atrophy and severe combined immunodeficiency to the list of disorders in the newborn screening requirements for Indiana, passed the House.  It has now crossed over to the senate and has been referred to the Senate Committee on Health and Provider Services. IDF will be

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February 05 2018
Community

Young Woman from Brazil Shares Advice for PI Community

POSTED BY: kmcmahon

Lara Richter, a college student living in Brazil, was writing a paper on her primary immunodeficiency disease (PI) when she came across the Immune Deficiency Foundation (IDF) in her research. Lara was pleased to see all that IDF has to offer, and she hopes that someday a foundation like IDF can reach places as far as Brazil so more people around

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