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March 03, 2021

Urgent: Biologic Withdrawal Information for Gamunex (Three Lots)

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Grifols Therapeutics LLC has initiated a voluntary withdrawal of Gamunex™ Images courtesy of the Patient Notification System.

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March 03, 2021
Community, PI

Have You Herd?

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Have you listened to IDF’s monthly podcast? Check out our new name: Have You Herd? An IDF Podcast. “Have You Herd?” was created to honor our awesome zebra herd and explore topics that affect the PI community. Join IDF President & CEO John G. Boyle as he hosts specialists and panels to discuss PI-related, diagnosis-specific, and

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February 26, 2021
Walk for PI

Donor Spotlight: Marilyn Rifkin & Debbie Junk

POSTED BY: rdelaney

Marilyn Rifkin, diagnosed with Common Variable Immune Deficiency (CVID), attended her first IDF educational event in 2019. During the event, she was inspired and thought IDF offers so much; it’s so important that patients and families know about this organization. Without a second thought, she decided to volunteer as a walk-chair to bring a

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February 26, 2021
Awareness, Community

Brother donates cells to sibling with rare PI

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Bree Andreazza remembers exactly how she and her husband Troy felt after learning their 4-month-old son Levi had Wiskott-Aldrich syndrome (WAS) and required intensive treatment. “I went numb the moment they said we had no other option but to proceed with a bone marrow transplant. My husband and I were very upset,” said Bree. “We were given a

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February 24, 2021
SCID, SCID Compass

Video Focuses on Navigating Hospital Stay

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What are some questions you should ask when considering a bone marrow transplant (BMT) for your baby with severe combined immunodeficiency (SCID)? A new video posted to the SCID Compass website provides parents with a brief overview of topics to explore when researching transplant centers. Created by SCID Compass partner Genetic Alliance

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