Important Notice for Medicare Beneficiaries with PI Receiving SCIG
Have you been hearing from your specialty pharmacy that they may not be able to cover your subcutaneous immunoglobulin replacement therapy (SCIG) as a Part B Medicare benefit? If you are a Medicare beneficiary on subcutaneous immunoglobulin replacement therapy (SCIG) with a qualified primary immunodeficiency (PI) condition including Common
Read MoreComing Next Month: IDF 2018 National Ig Treatment Experiences and Preferences Survey
Your Input Creates a Better Understanding of Immunoglobulin (Ig) Replacement Therapy The IDF 2018 National Ig Treatment Experiences and Preferences Survey will be released in September 2018 and will be mailed to randomly selected households in the IDF community. This survey specifically focuses on individuals’ experience with intravenous
Read MoreSince You Asked: Question & Answer (August 2018)
These Questions & Answers originally appeared in the IDF monthly e-newsletter, Primary Immune Tribune. Click here to subscribe. Question 1: I have CVID and will be going on Medicare next year. What do I need to know about Medicare coverage, and how is my immunoglobulin (Ig) replacement therapy going to be covered? Question 2: My son has a
Read MoreMade Visible: My Story of Living with a Primary Immunodeficiency
I spent the first 27 years of my life hiding my invisible illness. I was diagnosed with Hyper IgE/Job Syndrome when I was ten years old. That diagnosis wasn’t easy to come by; my mom had taken me to see countless doctors, specialists, and healers. When an immunologist finally gave us a diagnosis, we learned the name of the disease but not much
Read MoreImmune Deficiency Foundation (IDF) Awarded $4 Million HRSA Grant For Nationwide Screening and Education Program for Severe Combined Immunodeficiency (SCID)
Association of Public Health Laboratories (APHL) and RTI International to serve as collaborative partners with IDF to implement new initiative targeting people with SCID in underserved areas. August 23, 2018 (Towson, MD) – The Immune Deficiency Foundation (IDF), the national patient organization for people with primary immunodeficiency diseases (
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