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September 20, 2023
Advocacy, Community, SCID, SCID Compass

Carol Ann Demaret advocated for SCID—and IDF

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Carol Ann Demaret, mother of David Vetter, who lived for 12 years with severe combined immunodeficiency (SCID), served on the Immune Deficiency Foundation (IDF) Board of Trustees for 30 years.

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September 15, 2023
Education

Study shows CVID patients at higher risk for neurologic issues

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An IDF-funded study at the University of Utah found that patients with common variable immune deficiency (CVID) experience significant neurologic manifestations affecting their quality of life.

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September 14, 2023
Advocacy

UnitedHealthcare dropping four immunoglobulin products from formulary

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Starting October 1, 2023, UnitedHealthcare will be dropping Asceniv, Cuvitru, Cutaquig, and Panzyga immunoglobulin (Ig) products from its formulary for individual plans, hurting patient access to necessary medications.

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September 14, 2023
COVID-19

Update - Fall immunizations: COVID-19, flu, and RSV

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Learn about immunization options and recommendations for COVID-19, flu, and respiratory syncytial virus (RSV) this cold and flu season for those with primary immunodeficiency (PI).

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September 13, 2023

Volunteer Spotlight: Rafhaela (Ella) Vedia

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Meet Rafhaela (Ella) Vedia.

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