Call to Action - Save the Nation’s Newborn Screening Advisory Committee
Every year, more than 12,000 infants are born with health conditions, such as severe combined immunodeficiency (SCID), that are not apparent at birth, but can cause serious health problems or even death if not treated early. And every year, these babies receive timely life-saving or life-altering care because of newborn screening. Newborn
Read MoreUrgent: Biologic Withdrawal Information for Gamunex (Two Lots)
December 31, 2019 Grifols Therapeutics LLC has initiated a voluntary withdrawal of Gamunex. Click here to read the notification from the Patient Notification System. December 17, 2019 Grifols Therapeutics LLC has initiated a voluntary withdrawal of Gamunex. Click here to read the notification from the Patient Notification System.
Read MoreGrifols launches XEMBIFY®
XEMBIFY®, Grifols’ first 20% subcutaneous immunoglobulin for Primary Immunodeficiency (PI) treatment, is now available in the U.S. Read the press release here.
Read MoreIDF Launches New Website Supporting Parents of Babies with SCID
The Immune Deficiency Foundation (IDF) is excited to announce the launch of the new SCID Compass website which was designed to support parents of babies diagnosed with severe combined immunodeficiency (SCID), a rare genetic condition that is fatal if not treated within the first year of life. The SCID Compass website, www.scidcompass.org,
Read MoreChronic Granulomatous Disease (CGD) Survey
Your Input Creates a Better Understanding of CGD In September, IDF launched the first-ever Chronic Granulomatous Disease (CGD) Survey. Initially emailed to individuals and families affected by CGD, IDF has also recently started calling households to offer participants the opportunity to complete the survey over the telephone. By participating in
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