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May 13, 2022
SCID, SCID Compass

SCID advocate devotes herself to helping parents navigate medical world

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When Barb Ballard gave birth to her son Ray in 1994, doctors provided him with newborn screening.

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May 12, 2022
COVID-19, PI

Update - Venturing into a pandemic-weary world as a person with primary immunodeficiency

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Update - To gauge COVID-19 risk, consider levels of community transmission, the setting for an activity, and the vaccination status of others. But for travel, additional factors apply to those with PI.

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May 09, 2022
SCID, SCID Compass

SCID survey seeks feedback on long-term care needs

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Researchers at the University of California San Francisco (UCSF) seek input on a survey about long-term follow-up related to individuals and families coping with a severe combined immunodeficiency (SCID) diagnosis.

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May 05, 2022
SCID, SCID Compass

SCID carrier discussion explores family planning, mental health

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“SCID Compass: A Carrier’s Perspective,” is a discussion between four women affected by SCID, one of whom has SCID, and three mothers of children with SCID who are carriers of a SCID gene variant.

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May 02, 2022
Living with CGD

CGD symptoms vary with superoxide production

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Mutations in genes of persons with chronic granulomatous disease (CGD) affect the person’s production of superoxide, which in turn dictates the severity of CGD symptoms.

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