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October 19 2017

Voluntary Market Withdrawal of Octagam® 10% Lot Numbers: K724B8541 & K725A8541

POSTED BY: AFreestone

Voluntary Market Withdrawal of Octagam® 10% Lot Numbers: K724B8541 & K725A8541 Expiration Dates:  K724B8541 (June 14, 2019) & K725A8541 (June 23, 2019) Click here to read the announcement from the FDA.

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October 18 2017
Awareness, Community, Fundraising

Houston Resident Helps Hurricane Victims, Raises Fund for IDF

POSTED BY: kmcmahon

In the wake of recent events throughout our country, members of the PI community are joining together to help make a difference for those living with PI. Recently Houston resident Elise Lubanko, a member of the primary immunodeficiency community, hosted a blood drive to help those affected by Hurricane Harvey. During the blood drive, she held a

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October 16 2017
Awareness, Community, Family, Fundraising, In the News, Walk for PI

One Mom Shares Her Story of Living with PI and Finding IDF

POSTED BY: kmcmahon

IDF community member, Betsy Abramson, wrote and presented this speech for IDF Walk for Primary Immunodeficiency – Cleveland. “A woman, her husband and child are walking down the street. They stumble and fall into a deep, dark hole. The woman yells for help. A very kind doctor walks by, sees them in the hole, stops to gives some simple

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October 12 2017
Advocacy, Awareness, Community, Medicare

Next Steps for Participants of Medicare In-Home IVIG Project

POSTED BY: kmcmahon

Both Houses of Congress have passed, and the President has signed into law the legislation that extends the Medicare IVIG Demonstration Project. This demo project is now set to run through December 31, 2020, or until allocated funds are spent, whichever comes first. Currently, IDF is in discussions with the Centers for Medicare and Medicaid

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October 04 2017
In the News

IDF Founder Marcia Boyle Featured in Plasma Protein Therapeutics Association (PPTA) Magazine, The Source.

POSTED BY: rdelaney

A Salute to Marcia Boyle Click here to read the full article. 

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