You are here

May 11, 2021
SCID, SCID Compass

Gene Therapy for ADA-SCID Shows Promise

POSTED BY:

Research findings recently published in the New England Journal of Medicine provide hope that gene therapy may one day be an accepted treatment for ADA-SCID instead of an experimental one.   Babies born with severe combined immunodeficiency, or SCID, have no immune system and die from infection within the first year or two of life unless they

Read More
April 30, 2021
Living with CGD

Living Life to the Fullest

POSTED BY:

Robert Karp enjoys a good physical challenge. Paddleboarding, racquetball, tennis, scuba diving, and sky diving are among his list of favorite activities, along with his current passion - indoor rock climbing. He’s even participated in 5K mud runs, a jog (or slog) through mud pits and other obstacles. For Robert, diagnosed with chronic

Read More
April 29, 2021
SCID, SCID Compass

SCID Fact Sheet Ready for Distribution

POSTED BY:

In 2018, IDF and its partners celebrated a significant victory when the last of all 50 states finally included severe combined immunodeficiency as a condition tested on their newborn screening blood panels, an effort that took ten years. Now IDF’s SCID Compass program has taken the next step in a national effort to expedite timely medical care for

Read More
April 29, 2021

Urgent: Biologic Withdrawal Information for Gamunex™

POSTED BY: mtewey

Grifols Therapeutics LLC instituted a voluntary recall of one lot of Gamunex™ CLICK HERE>> to download Grifols Response Letter

Read More
April 28, 2021
Walk for PI

Donor Spotlight: Team CuKo

POSTED BY: rdelaney

Curtis Anderson was diagnosed with Common Variable Immune Deficiency (CVID) at nine years old. Over 35+ years later, Curtis and his wife, Koryn, have continued to manage his condition and have become active participants in the IDF community. Together, they’ve attended IDF forums and regional and national conferences. When IDF announced the

Read More