Why should you walk for PI?
It all started in 2013. Three walks in three cities across the country: Philadelphia, Los Angeles and Chicago. Members of the PI community wanted a way to create awareness about primary immunodeficiency diseases (PI), and IDF Walk for PI soon became their answer. 2013 IDF Walk for PI - Los Angeles Each year the walk grew and expanded—soon
Read MoreSince You Asked: Question & Answer (June 2018)
These Questions & Answers originally appeared in the IDF monthly e-newsletter, Primary Immune Tribune. Click here to subscribe. Question 1: Starting Ig TherapyQuestion 2: Finding Health Insurance that Covers Ig Therapy Question: I have been tested a few times and my IgG levels are under 20, yes double digits! I have had a lung infection for
Read MoreDo You Know Your Immunoglobulin Product?
Whether you go to an infusion center or receive your immunoglobulin (Ig) at home, it is imperative that you know what product is being infused into your body. Are you receiving the product that was prescribed for you by your provider? IDF is periodically notified by patients who are unable to get their prescribed product because their product was
Read More“I have a primary immunodeficiency disease. It’s long and hard to pronounce.”
Calleigh of Ridley Park, PA is a bright 8-year-old girl with a positive attitude who loves dancing and cats. She is also living with hypogammaglobulinemia, a type of primary immunodeficiency disease (PI). As she grew, so did her number of illnesses—despite the previous hope that her disease diagnosed at infancy was transient (she would grow out of
Read MoreRaising PI Awareness at a Newly Opened CSL Plasma Center
Jessica Goddard is a member of the IDF community and is living with Common Variable Immune Deficiency (CVID). As a way to raise awareness of primary immunodeficiency diseases among plasma donors and centers, Jessica volunteers as an IDF Plasma Awareness Coordinator. Recently, a new CSL Plasma donation center opened in Columbia, South Carolina.
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