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November 12, 2019

PI Community Rallies to Promote Plasma Donations

POSTED BY: mtewey

With the recent plasma shortage, the primary immunodeficiencies (PI) community has mobilized in a variety of ways to create awareness of the importance of plasma donations. Since earlier this year, when IDF began putting out the call for help, we have welcomed more than 30 new Plasma Awareness Volunteers to our existing team of 160. These

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November 08, 2019

ABC TV’s The Good Doctor - 11/11/19 - Significant Concerns Over Portrayal of Primary Immunodeficiency Diseases

POSTED BY: AFreestone

IDF has been alerted to the fact that the episode of The Good Doctor airing on ABC TV on Monday, November 11, 2019 will feature a storyline about a person living with a primary immunodeficiency disease (PI). While this type of exposure can lead to increased awareness of PI, sadly it appears that this show will end up being another in a long line

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November 07, 2019

Urgent: Biologic Withdrawal Information for Gamunex

POSTED BY: AFreestone

Grifols Therapeutics LLC has initiated a voluntary withdrawal of Gamunex.Click here to read the notification from the Patient Notification System.  

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October 29, 2019

Gavin’s Jedi: One family’s way of making sense of XLA


At the age of 3-years-old, Gavin Angelos, was diagnosed with X-linked Agammaglobulinemia (XLA). After receiving his diagnosis, the Angelos family wasn’t sure how to move forward in life, especially after they realized that none of their friends, peers, or family could relate to or even understand the primary immunodeficiency disease (PI). This

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October 15, 2019

Yale Genomic Testing and Research Study For Children Affected by Primary Immune Deficiencies

POSTED BY: AFreestone

Click Here to view a downloadable PDF about this study.  

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