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November 30, 2020
Living with CGD

All About X-linked Carriers

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Get Your Questions Answered on CGD X-Linked Carriers The medical community is beginning to shine a little light on X-linked female carriers of Chronic Granulomatous Disease (CGD). Symptoms can range vastly from patient to patient, and many healthcare professionals remain unfamiliar with this rare genetic condition. The good news is that, as

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November 30, 2020
SCID, SCID Compass

Key Opinion Leaders discuss SCID

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Now that screening for severe combined immunodeficiency (SCID) is taking place in all 50 states, more babies are being diagnosed and the landscape of SCID – from diagnosis to treatment to follow-up – is rapidly evolving. In order to address changes surrounding a diagnosis of SCID, parents, healthcare providers, state health laboratory

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November 25, 2020

COVID Vaccine Video Update

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IDF Physician Advisory Committee Members Dr. Kathleen Sullivan and Dr. Vivian Hernandez-Trujillo released an informational video on November 25 providing updates on the recent developments in vaccines for COVID-19. The video explains: How vaccines work in general Types of vaccines available for COVID-19 in the coming months and how they work

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November 24, 2020
SCID, SCID Compass

Chiesi Global Rare Diseases has acquired Unikeris Limited

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Today, Chiesi Global Rare Diseases announced that it has acquired Unikeris Limited. In the primary immunodeficiency world, Unikeris Limited is a global marketer for Revcovi for the treatment of ADA-SCID. ADA-SCID is a type of PI that occurs in approximately one in 200,000 to 1,000,000 newborns worldwide. Chiesi Group Acquires Unikeris Limited and

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November 23, 2020
Advocacy

Home IVIG options for Medicare Demonstration Enrollees: FAQs

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If demonstration extension legislation does not pass before the end of the year, will I be able to continue to get my medications? Several options are discussed in this post from October 12, 2020. I think I may be eligible for home infusion services under the temporarily more flexible homebound rules to address the current state of emergency.

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