Our mission and history
Learn more about what drives our work for and with the PI community.
-
Understanding primary immunodeficiency (PI)
Understanding PI
The more you understand about primary immunodeficiency (PI), the better you can manage it. Learn about PI diagnoses and treatment options.
-
Living with PI
Living with PI
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
-
Get involved
Get involved
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
-
Advancing research and clinical care
Advancing research and clinical care
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), these resources will help you advance the field. Get details on surveys, grants, and clinical trials.
Our mission
The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life for every person affected by primary immunodeficiency.
We foster a community that is connected, engaged, and empowered through advocacy, education, and research.
What we stand for
A commitment to enhancing patients’ lives by ensuring everyone with PI understands their diagnosis, treatment options, standards of care, and opportunities for support within the PI community.
Vision
A healthier day, every day, for every person with immune deficiency.
Core values
Inclusion
Integrity
Innovation
Guiding principles
Commitment
Leadership
Accountability
Constituent promise
Transparency
Trust
Compassion
Discover our history
For over 45 years, the Immune Deficiency Foundation has worked to improve the lives of those affected by PI. Since being formed around our founder and former president Marcia Boyle’s kitchen table, we've made history—and continue to do so.
Explore the timeline
Get to know us
Our leadership
Get to know the leaders and advisors who provide vision, experience, and knowledge..
Meet our leaders
Our staff
Get to know the people who earn their stripes as professional staff.
Meet our staff
Annual reports
Every year, world-class support is funded by the generosity of our donors.
Browse reports
Career opportunities
Are you passionate about rare disease and looking for an opportunity to make a meaningful impact? Check out our job listings.
View job openings
Sign up for updates
Receive news and helpful resources to your cell phone or inbox. You can change or cancel your subscription at any time.
