Research Grant Program
The foundation provides research grants to support clinicians and scientists focused on primary immunodeficiency (PI).
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Understanding primary immunodeficiency (PI)
Understanding PI
The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
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Living with PI
Living with PI
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
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Get involved
Get involved
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
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Advancing research and clinical care
Advancing research and clinical care
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
Most recent awardees
2025’s four Research Grant Program awardees will use their funding to better understand some of the rarest primary immunodeficiencies (PIs) and develop diagnostics and treatments. Grantees are pictured from left to right, Drs. Eric Allenspach, Caroline Kuo, Ashley Lee, and Patrick O'Connell.
White paper challenge
In 2022, IDF sponsored a White Paper Challenge to seek out new ideas and address relevant topics in the PI community. We invited submissions from all individuals, institutions, schools, and researchers with exciting ideas about expanding awareness in communities of color, improving access to clinical trials, and shortening the time from diagnosis to treatment.
Discover more research opportunities
Survey research
The IDF Survey Research Center provides current information on PI through the analysis of patient and caregiver survey responses.
Browse reports
Clinical trials
Provide your patients with information on participating in clinical trials for PI.
Explore trials
Patient registry
USIDNET is a national registry of PI patients who have volunteered their medical information to help researchers answer important questions.
View registry
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