Get Connected leader
Facilitate, organize, and plan support spaces for people with primary immunodeficiency and their families.
The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
Facilitate, organize, and plan support spaces for people with primary immunodeficiency and their families.
IDF Get Connected Groups provide a space for individuals with primary immunodeficiencies and their families to receive support and build community. As a group leader, you will organize and lead regular meetings in your local or topic area.
As a Get Connected leader, your main responsibilities will include setting meeting dates, finding a suitable venue (this is often Zoom), planning and leading group activities, and representing the group to IDF. You will be expected to organize at least two meetings per year and commit to a minimum of one year in this position.
To be considered for this role, you must:
Don't take it from us. Let volunteers tell you all about their own experiences. Read recent profiles of IDF volunteers to learn about their involvement in a variety of volunteer roles.
Read volunteer storiesIDF volunteers host Get Connected Groups in local communities around the country.
Learn about support groupsSubmit an application to become a part of our community of changemakers.
email: volunteer@primaryimmune.org
phone: 410-321-6647
Share your knowledge and experience of PI with healthcare providers and the public.
Be a beacon of hope and provide invaluable one-on-one support to people living with PI.
Help organize and execute Walk for PI events in your area.
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The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life for every person affected by primary immunodeficiency.
We foster a community that is connected, engaged, and empowered through advocacy, education, and research.
Combined Charity Campaign | CFC# 66309