| Immune Deficiency Foundation

Understanding primary immunodeficiency (PI)
Understanding PI
The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
Learn more about PI
Living with PI
Living with PI
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
Learn more about living with PI
Get involved
Get involved
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
Get involved today
Advancing research and clinical care
Advancing research and clinical care
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
View resource details

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Nurses Advisory Committee members 2024 edit

New NAC members dedicated to solving the ‘puzzles’ of PI

Woman uses asthma inhaler.

Primary immunodeficiency can bring other immune system diagnoses

bird

Volunteer established PI education groups 33 years ago

IDF video

Ask the expert: PI and travel

Doctor speaking with girl and her parent.

Mavorixafor approved for treating WHIM syndrome

insurance policy

Insurers block immunoglobulin access using multiple tactics

Xolremdi

Mavorixafor.
Approved to treat: Warts, hypogammaglobulinemia, immunodeficiency, myelokathexis (WHIM) syndrome.
Ages: 12+

Report side effects/adverse events at 1-866-MED-X4MI (1-866-633-9464).

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Elias cheering

Family advocates for son with NEMO

Person using pen and clipboard to fill out paperwork.

Autoimmune diagnoses may obscure primary immunodeficiency

Title slide for 2023 National Patient Survey report.

2023 National Patient Survey report

Immune Deficiency Foundation
7550 Teague Road, Suite 220
Hanover, Maryland 21076

P: 410-321-6647