National Medical Association
The National Medical Association (NMA) is the collective voice of African American physicians and the leading force for parity and justice in medicine and the elimination of disparities in health.
Hispanic Society for Rare Diseases / Sociedad Hispana de Enfermedades Raras
An association that promotes public awareness about rare diseases and provides information and resources in Spanish to families of Hispanic origin, as well as to organizations, scientists, and healthcare professionals focused on rare diseases.
Rare and Black
At Rare And Black, our mission is to empower and uplift Black patients living with rare disorders by raising awareness, promoting advocacy, driving legislative change, and improving access to crucial resources.
Ensoma launches clinical trial to prepare for CGD gene therapy
Norovirus surge requires vigilance from PI community
CSI Pharmacy
Providing complex therapies to patients in the home setting is a long-term commitment for our CSI Pharmacy staff.
Care transition and systems immunology experts join advisory committee
Patient advocacy writer draws on experience with CVID
Lunch & Learn: IPEX syndrome

