HealthHIV
HealthHIV is a national non-profit working with healthcare organizations, communities, and providers to advance effective HIV, HCV, STI and LGBTQ health care, harm reduction and health equity through education and training, technical assistance and capacity building, advocacy, communications, and health services research and evaluation.
Tired of being sick? It could be your immune system.
Our assessment tool helps identify potential primary immunodeficiency patterns. Take the first step toward answers.
Study uses genomic screening to look for PI in newborns
Bold Conversations: Health insurance
Statement on federal policy changes: Pledge to protect the immunocompromised
Powerlifter with SCID finds strength in family, friends, and faith
Manual para pacientes y familias sobre inmunodeficiencias primarias, sexta edición
National Medical Association
The National Medical Association (NMA) is the collective voice of African American physicians and the leading force for parity and justice in medicine and the elimination of disparities in health.
Hispanic Society for Rare Diseases / Sociedad Hispana de Enfermedades Raras
An association that promotes public awareness about rare diseases and provides information and resources in Spanish to families of Hispanic origin, as well as to organizations, scientists, and healthcare professionals focused on rare diseases.
Rare and Black
At Rare And Black, our mission is to empower and uplift Black patients living with rare disorders by raising awareness, promoting advocacy, driving legislative change, and improving access to crucial resources.

