The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
Baltimore, MD
The Immune Deficiency Foundation (IDF), the leading national nonprofit organization dedicated to improving the diagnosis, treatment, and quality of life for people with primary immunodeficiencies, today announced that Quest Diagnostics has joined them on a new wellness initiative.
This collaboration comes as part of the Quest Diagnostics Season of Giving Program, reflecting both organizations' commitment to supporting patients and families affected by primary immunodeficiency. Quest Diagnostics brings extensive expertise in diagnostic testing and laboratory services to advance IDF's mission of serving the primary immunodeficiency community.
"We are thrilled to welcome Quest Diagnostics," said Jorey Berry, president and CEO. "Their commitment to diagnostic excellence and patient care aligns perfectly with our mission. We’re grateful for companies who share our dedication to bringing hope to families affected by primary immunodeficiencies and awareness to a rare, chronic, and often misdiagnosed condition."
Through this collaboration, Quest Diagnostics and IDF will work together to:
Quest Diagnostics works across the healthcare ecosystem to create a healthier world, one life at a time. We provide diagnostic insights from the results of our laboratory testing to empower people, physicians and organizations to take action to improve health outcomes. Derived from one of the world's largest databases of de-identifiable clinical lab results, Quest's diagnostic insights reveal new avenues to identify and treat disease, inspire healthy behaviors and improve healthcare management. Quest Diagnostics annually serves one in three adult Americans and half the physicians and hospitals in the United States, and our nearly 50,000 employees understand that, in the right hands and with the right context, our diagnostic insights can inspire actions that transform lives and create a healthier world.
Primary immunodeficiencies (PIs), also known as inborn errors of immunity (IEI), are a group of more than 550 rare, chronic conditions in which part of the body's immune system is missing or does not function correctly. According to the National Institutes of Health, there are approximately 500,000 individuals in the U.S. with a PI. These conditions are caused by hereditary genetic defects and can affect anyone, regardless of age, gender, or ethnicity. PI can cause infection, malignancy (cancer), allergy, autoimmunity, autoinflammation, or any simultaneous combination of these issues.
The Immune Deficiency Foundation (IDF) is the largest primary immunodeficiency (PI) patient advocacy group in the United States, with 44 years of expertise in primary immunodeficiency. As such, we take pride in helping to connect, engage, and empower families to live longer, stronger, healthier lives. Whether you are looking for subject matter experts on PI (clinicians or patients), information about an upcoming event, or a statement from the organization on a particular topic, we can offer guidance and resources in a variety of areas, including:
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The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life for every person affected by primary immunodeficiency.
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