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Finding joy in advocacy with Rafhaela Vedia

September 17, 2026

View a transcript of this podcast. 

Longtime Immune Deficiency Foundation advocate Rafhaela Vedia sits down with Rebecca Russ, the foundation's grassroots advocacy specialist, to discuss her journey with severe combined immune deficiency (SCID) and the fulfilment she gets from legislative advocacy.

The information, terminology, and opinions presented in this forum do not necessarily reflect the views of the Immune Deficiency Foundation, its Board of Trustees, sponsors, or donors.

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