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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

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Volunteer spotlight: Rafhaela (Ella) Vedia

September 13, 2023
Pre-med student Victoria Medl, who has PI, eyes a career in immunology.

Young adult volunteer and pre-med student eyes career in immunology

June 15, 2023
Jirsa Friends

Young adult with CVID strives to improve others’ lives

May 30, 2023
Taylor Kane feeds her father John Kane, diagnosed with adrenoleukodystrophy (ALD), which affected his physical and cognitive functioning.

Remember The Girls empowers women affected by X-linked conditions

March 30, 2023
Susan Day is surrounded by her family, from left, son Jackson, husband Jason, and son Jace.

Mom’s common variable immune deficiency diagnosis explains lifelong infections and fatigue

January 09, 2023
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IDF Peer Support volunteers provide encouragement and assistance

November 14, 2022

Family coping with chronic granulomatous disease relies on tight bonds

August 31, 2022

SCID advocate devotes herself to helping parents navigate medical world

May 13, 2022
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Donor spotlight: Lois Crudden

October 27, 2021
maria diaz unexplainable miracles

'Blessed with unexplainable miracles'

February 18, 2021

Volunteer treasures IDF friendships

August 05, 2020

Long-time IDF volunteer finds love, support within her zebra family

July 23, 2020

CGD has shaped me for the better

April 02, 2020
mom, dad, and baby photographed outside

The SCID journey: Navigating choices and post-treatment

January 01, 2020
Kim DiGangi at an IDF Walk for PI event.

IDF volunteer Kim DiGangi: A little help from new friends can go a long way

September 20, 2018
Mits Morales, center, with fellow IDF volunteers on Capitol Hill for IDF Advocacy Day, March 22, 2018.

Young man with CGD helps others, advocates for the community

April 19, 2018
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My relationship with an amazing woman

June 12, 2017

IDF young adult advocating for change: Part two – This is just your prologue

February 22, 2016

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

Coordinated support groups, events, and one-on-one connections ensure that you never need to feel alone.

See all support groups

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends. 

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.