Skip to main content
IDF logo

Browse resources

Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

Person typing on a computer

Medicare Home IVIG Benefit: FAQs

January 19, 2023
IDF Podcast Graphic

Skilled Nursing Facilities with Dr. M. Elizabeth M. Younger

January 18, 2023
Person typing on a computer

History of the Medicare IVIG Access Demonstration Project

January 02, 2023
Person typing on a computer

Home IVIG becomes a permanent Medicare benefit after a decade

December 23, 2022

From plasma to copay accumulators, IDF achieves advocacy wins

December 14, 2022
Person typing on a computer

Report shows health benefits of Medicare IVIG Demonstration

November 28, 2022
Person typing on a computer

U.S. Ban on Mexican plasma donors temporarily lifted

September 22, 2022
Person typing on a computer

How the Inflation Reduction Act tackles healthcare costs

September 02, 2022
Print Material Fallback

Patient advocacy engagement toolkit

August 09, 2022
Person typing on a computer

New diagnostic code for ultrarare primary immunodeficiency promises multiple benefits

August 02, 2022
IDF Podcast Graphic

State of the states: 2022 policy advocacy overview

July 25, 2022
Person typing on a computer

Why laboratory-developed tests’ fate matters for rare disease patients

June 24, 2022
Person typing on a computer

Workplace accommodations for the immunocompromised as pandemic wanes

March 30, 2022
IDF Podcast Graphic

IDF advocate connections: becoming a rare disease advisory council member

January 31, 2022
Person typing on a computer

Ensuring access to care tops IDF’s policy priorities

January 27, 2022
Pills on a blue background.

Why antimicrobial resistance matters for the immunocompromised

November 22, 2021

Report explores telehealth for SCID

November 02, 2021
Print Material Fallback

Model Coverage Policy for Ig Replacement Therapy

July 22, 2021

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

lady looking at computer

Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.