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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

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Medicare Home IVIG Benefit: FAQs

January 19, 2023
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History of the Medicare IVIG Access Demonstration Project

January 02, 2023
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Home IVIG becomes a permanent Medicare benefit after a decade

December 23, 2022
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Report shows health benefits of Medicare IVIG Demonstration

November 28, 2022
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Paying for immunoglobulin replacement therapy

November 14, 2022
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How the Inflation Reduction Act tackles healthcare costs

September 02, 2022

How to navigate health insurance and Medicare with a PI diagnosis

August 15, 2022
Medicare

Medicare and primary immunodeficiency

June 17, 2022
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Health insurance for the PI community

May 23, 2022
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What's special about a specialty pharmacy?

November 22, 2021
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Addressing payer challenges & ensuring access to genetic testing

October 28, 2021
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Model Coverage Policy for Ig Replacement Therapy

July 22, 2021
Enrolling new patients

Financial assistance available

January 26, 2021

Navigating Medicare

November 06, 2020
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Chapter 41: Health Insurance

June 30, 2019
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Miracle flights offers medical travel assistance for children with CGD and Families

February 01, 2019
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Sample letter from provider appealing denial of authorization of immunoglobulin therapy

October 17, 2018
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Prescription costs and co-pay accumulators

September 18, 2018

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

See all support groups

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.