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Whether you are someone living with PI, a caregiver, or a healthcare professional, you’ll find articles, videos, podcasts, and more to help deepen your understanding of PI.

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Lunch & Learn: Transitioning from pediatric to adult care

June 05, 2023
Jirsa Friends

Young adult with CVID strives to improve others’ lives

May 30, 2023
Students in a classroom

PI education kit for schools

March 28, 2023
Young woman on a bridge.

Immune Deficiency Foundation Guide for Young Adults

February 02, 2023

Educate schools on primary immunodeficiency to better support your child

August 27, 2022
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Guide for students with primary immunodeficiency updated for back-to-school season

August 23, 2022
Girl and classmates at school writing.

IDF School Guide for Students with Primary Immunodeficiency©, Fourth Edition

August 23, 2022
Students in a classroom

Back to school with primary immunodeficiency

August 11, 2022
Person typing on a computer

Addressing caregivers’ mental health is key after SCID diagnosis

August 01, 2022

Agenda set for July Teen and Young Adult Escape

July 07, 2022
Casey Warford

'Take the reins of your own healthcare'

February 28, 2022

Back-to-school Q&A focuses on SCID

September 17, 2021
IDF Podcast Graphic

Teens with PI and vaccines

September 17, 2021

A la secundaria y universidad: una sesión para padres de niños de 12 a 20 años diagnosticados con PI

August 09, 2021

Building community of young adults with CGD

May 05, 2020
Person typing on a computer

Gene therapy for SCID: Q&A with Dr. Sung-Yun Pai

January 24, 2020
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Female hypogonadism in APECED/APS type 1

July 26, 2019
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Chapter 43: Adolescents Living with Primary Immunodeficiency Diseases

June 30, 2019

What is PI?

Learn the signs and symptoms of PI and when it might be time to ask your doctor about it.

Learn about PI

Get support

IDF coordinates support groups, events, and one-on-one connections, so you never need to feel alone.

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Ask IDF

Getting answers can help create peace of mind. Ask us anything and we'll consult with experts.

Specialists can be located online through the IDF Clinician Finder. (Please note, if no results populate, increase the distance from your address. You can also search by your state).

Please note the following important information about the list of specialists:

  • These clinicians have voluntarily reported to IDF that they diagnose, treat, and manage patients with primary immunodeficiency (PI). Please know that IDF does not verify these reports.
  • This is not a referral. IDF does not recommend one clinician or medical facility over another or refer patients to a particular provider.
  • It is your responsibility or that of your legal guardian to evaluate, select and engage a clinician or facility, given your insurance coverage and other circumstances, to help you manage your PI. 
    There might be other clinicians at each facility that also treat PI.

Questions to ask while evaluating a clinician or facility:

  • Do you accept my insurance?
  • Do you diagnose and treat patients with primary immunodeficiency diseases? (If already diagnosed, name the PI.)
  • How many patients with primary immunodeficiencies are treated at your facility?

For those receiving Ig replacement therapy:

  • Do you prescribe IVIG and SCIG?
  • Do you prescribe more than one brand of immunoglobulin?
  • Do you offer patients receiving IVIG the option of receiving their infusion in a medical or home setting?

Some patients also find physicians through our Get Connected Groups or IDF Friends

Our virtual education programs are recorded and uploaded to our website resource library and YouTube page. You can view our webinars only via our YouTube webinars playlist.